Every aHUS patient is in there somewhere.
aHUS alliance Global Action came up with this table describing aHUS patients position within a matrix of triggers and mutations guiding…
Thailand enters Global aHUS Town
A chance meeting at an American Kidney Fund conference a few days ago alerted us to aHUS patients in Thailand. So…
What aHUS patients think about a name change
If the name aHUS is to be changed and it remains a big IF as it remains in a state of…
Who are the aHUS persons requiring specific treatment.
It is clear that amongst the hullabaloo about aHUS renaming it was not those aHUS persons with known complement mutations, or…
New name plans what the aHUS community think about them
It is aHUS Awareness Day (it started in Tuvalu first!) . The theme for this Awareness Day is the plan for…
Cause v Effect- cTMA v aHUS
This image illustrates what the debate about renaming our disease is about- cause or effect. On the left is the complement…
A key issue why a name change will impact – Taylor and Len chat
Taylor Coffman and Len Woodward are two public aHUS patient advocates who write about aHUS and the patient experience of living…
Would experts compromise on a new name for aHUS (1)
Is there room at this stage for some compromise on a new name for aHUS? Would something like cTMA-HUS or even…
Have you voted yet?
Do you want the name aHUS to go? Because they are going to change it. Do you want to have your…
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