The Hidden Burdens: Living with Atypical HUS
Hidden Burdens: Living with aHUS When most people hear about a rare disease diagnosis they think primarily about medical challenges, but…
It’s not about My Rare Disease
Support for rare disease patients and their families - what does that look like, and how does it address their needs? The aHUS Alliance looks behind the medical issues of living with a rare disease to focus on the many factors involved with the struggle to live a meaningful life centered on wellness.