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Read more about the article Good will come together?

Good will come together?

  • Post author:ahusalliance
  • Post published:September 29, 2018
  • Post category:Uncategorized
  • Post comments:0 Comments

Some key issues exist for atypical HUS patient groups regardless of national borders, which launched the aHUS Alliance on 2013 Rare Disease Day, 28 February. How momentum among nations impacted aHUSUK recognition that atypical HUS advocacy collaboration brings new focus: good will come together.

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Read more about the article Publication d’un livre sur SHUa en Francais

Publication d’un livre sur SHUa en Francais

  • Post author:ahusalliance
  • Post published:August 27, 2018
  • Post category:Uncategorized
  • Post comments:0 Comments

Grande nouvelle !!! Le livret AIRG sur le Syndrome Hémolytique et Urémique Atypique (SHUa) est enfin arrivé !! Nous l’attendions depuis…

Continue ReadingPublication d’un livre sur SHUa en Francais
Read more about the article Qu’est-ce que le syndrome hémolytique et urémique atypique:  SHUa?

Qu’est-ce que le syndrome hémolytique et urémique atypique: SHUa?

  • Post author:ahusalliance
  • Post published:August 22, 2018
  • Post category:Uncategorized
  • Post comments:0 Comments

Qu’est-ce que le syndrome hémolytique et urémique atypique: SHUa? Vivre avec la maladie rare SHU atypique – En connaître les bases. www.aHUSallianceAction.org

Continue ReadingQu’est-ce que le syndrome hémolytique et urémique atypique: SHUa?
Read more about the article Whistle-stop Tour Begins

Whistle-stop Tour Begins

  • Post author:ahusalliance
  • Post published:July 14, 2018
  • Post category:Uncategorized
  • Post comments:0 Comments

Paris FR - Whistle-Stop Tour of 4 aHUS Centers in the EU: Visits to Three Nations in 6 days. The aHUS Alliance toured centers of aHUS expertise and research in July 2018. 1st Stop: the Complement Diagnostics Laboratory led by Dr Veronique Fremeaux- Bacchi (HEGP).

Continue ReadingWhistle-stop Tour Begins

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