Some key issues exist for atypical HUS patient groups regardless of national borders, which launched the aHUS Alliance on 2013 Rare Disease Day, 28 February. How momentum among nations impacted aHUSUK recognition that atypical HUS advocacy collaboration brings new focus: good will come together.
Grande nouvelle !!! Le livret AIRG sur le Syndrome Hémolytique et Urémique Atypique (SHUa) est enfin arrivé !! Nous l’attendions depuis…
Qu’est-ce que le syndrome hémolytique et urémique atypique: SHUa? Vivre avec la maladie rare SHU atypique – En connaître les bases. www.aHUSallianceAction.org
Paris FR - Whistle-Stop Tour of 4 aHUS Centers in the EU: Visits to Three Nations in 6 days. The aHUS Alliance toured centers of aHUS expertise and research in July 2018. 1st Stop: the Complement Diagnostics Laboratory led by Dr Veronique Fremeaux- Bacchi (HEGP).