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Read more about the article Atypical HUS & the Teen Years

Atypical HUS & the Teen Years

  • Post author:Linda Burke
  • Post published:April 21, 2021
  • Post category:Featured
  • Post comments:0 Comments

Families with teenagers diagnosed with the life-threatening & rare disease atypical HUS deal with more than the usual host of everyday tangles regarding issues involving school, personal development, friendships, and activities.

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Read more about the article Finding a New Normal after Diagnosis

Finding a New Normal after Diagnosis

  • Post author:ahusalliance
  • Post published:January 31, 2019
  • Post category:Featured
  • Post comments:0 Comments

One mother’s personal story about her young son’s diagnosis with atypical HUS. Connected to the broader themes of what happens after a rare disease diagnosis as working parents strive to navigate, childcare, emotional stress, and family impacts.

Continue ReadingFinding a New Normal after Diagnosis
Read more about the article Parents Want to Know about aHUS Childrens’ Issues

Parents Want to Know about aHUS Childrens’ Issues

  • Post author:ahusalliance
  • Post published:March 21, 2017
  • Post category:Featured
  • Post comments:0 Comments

Exploring your Questions, Rare Disease Day 2017 Children living with the rare disease atypical HUS are first and foremost children.  Despite…

Continue ReadingParents Want to Know about aHUS Childrens’ Issues

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