Percentages and probabilities -AHUS AND MATH(S)
A frequent discussion on aHUS social media platforms is about "probabilities" and "percentages". The probabilities of someone inheriting an aHUS predisposing…
Iceland and aHUS
Nearly 400,000 people live in Iceland. At normal prevalence levels there should be two aHUS patients. There are at least three…
Incomplete aHUS penetrance in families
Although aHUS has genetic causes, in the majority of cases it is found that the patient is the only one in…
Why some family members onset and others don’t?
A couple of questions in the Rare Diseases Day video are about something that aHUS folk often talk about whenever they…