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rare disease advocates

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Read more about the article Patients Included:  Reality or Unmet Goal? (#4: MYTHS of Rare Disease Advocacy)

Patients Included: Reality or Unmet Goal? (#4: MYTHS of Rare Disease Advocacy)

  • Post author:ahusalliance
  • Post published:January 16, 2018
  • Post category:Featured
  • Post comments:0 Comments

    The Last in the aHUS Alliance Four Part Series Patients Included: Reality or Unmet Goal? 4 MYTHS of Rare…

Continue ReadingPatients Included: Reality or Unmet Goal? (#4: MYTHS of Rare Disease Advocacy)
Read more about the article 4 Myths of Rare Disease Advocacy:  Part 2

4 Myths of Rare Disease Advocacy: Part 2

  • Post author:ahusalliance
  • Post published:December 26, 2017
  • Post category:Featured
  • Post comments:0 Comments

    The SECOND Article in a Four Part Series Rare Disease Advocacy:  Digging deeper into Common Misperceptions   Although there…

Continue Reading4 Myths of Rare Disease Advocacy: Part 2
Read more about the article aHUS alliance video for aHUS Awareness Day 2016

aHUS alliance video for aHUS Awareness Day 2016

  • Post author:ahusalliance
  • Post published:September 24, 2016
  • Post category:Featured
  • Post comments:0 Comments

Use the following link to see the work of aHUS patients, parents and carers from 17 countries around the world on…

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Social Media and aHUS

  • Post author:ahusalliance
  • Post published:May 24, 2016
  • Post category:Uncategorized
  • Post comments:0 Comments

No one can describe the aHUS journey better than atypical HUS patients and their caregivers, and who better to globally frame…

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aHUS Voice in 2016

  • Post author:ahusalliance
  • Post published:May 19, 2016
  • Post category:Featured
  • Post comments:0 Comments

2016 aHUS Global Poll - Results aHUS Patient Global Voice In a multi-national collaboration of aHUS patient organizations around the world,…

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