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Rare Disease Day

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Read more about the article The Many Faces of Atypical HUS:  Rare Disease Day 2018

The Many Faces of Atypical HUS: Rare Disease Day 2018

  • Post author:ahusalliance
  • Post published:March 5, 2018
  • Post category:featured
  • Post comments:0 Comments

    What happens after the world annually marks Rare Disease Day on the last day of February? We carry on…

Continue ReadingThe Many Faces of Atypical HUS: Rare Disease Day 2018
Read more about the article Creating Your Advocacy Footprint in the Rare Disease Arena

Creating Your Advocacy Footprint in the Rare Disease Arena

  • Post author:ahusalliance
  • Post published:February 25, 2018
  • Post category:featured
  • Post comments:0 Comments

    What does the term ‘rare disease advocacy’ mean to you?  Patients and caregivers speaking up on social media or…

Continue ReadingCreating Your Advocacy Footprint in the Rare Disease Arena
Read more about the article They do not get it , or do they?

They do not get it , or do they?

  • Post author:ahusalliance
  • Post published:February 1, 2018
  • Post category:featured
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Everyone gets ill at some time don't they? Whether it is for example  a cold, stomach upset or measles, people know…

Continue ReadingThey do not get it , or do they?
Read more about the article Atypical HUS – Rare Disease Day 2018

Atypical HUS – Rare Disease Day 2018

  • Post author:ahusalliance
  • Post published:December 1, 2017
  • Post category:featured
  • Post comments:0 Comments

Rare Disease Day will be marked around the world on 28 February 2018 and the aHUS Alliance is pleased to announce…

Continue ReadingAtypical HUS – Rare Disease Day 2018
Read more about the article 100 days to Rare Disease Day 2018

100 days to Rare Disease Day 2018

  • Post author:ahusalliance
  • Post published:November 20, 2017
  • Post category:featured
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aHUS is rarer than rare In patient advocacy for rare diseases like aHUS there  seems to be a  background  cycle to…

Continue Reading100 days to Rare Disease Day 2018
Read more about the article Images for Rare Disease Day

Images for Rare Disease Day

  • Post author:ahusalliance
  • Post published:February 5, 2017
  • Post category:featured
  • Post comments:0 Comments

Below are some aHUS Alliance images for Rare Disease Day, please visit our social media for a comprehensive array of current…

Continue ReadingImages for Rare Disease Day
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