aHUS what is really happening?
Listening to some aHUS people on social media there is a sense that all are not satisfied with what is happening…
Rare Disease Day 2023- aHUS Community Project
On February 28, 2023, the world will join together to raise awareness for rare diseases like atypical HUS. Recognized annually on…
That was the aHUS Rare Disease Day Video that was
65 questions, 29 article blogs with answers to the questions published between 7 March and 16 May and over 300 views…
RD Day 2022: aHUS Webinar hosted by AKF
In honor of this year's Rare Disease Day on February 28, the American Kidney Fund (AKF) will be hosting “Rare Disease…
aHUS Project for 2022 Rare Disease Day
Rare Disease Day 2022: aHUS Alliance Global Action to mark the day with a patient-centered video that focuses on questions posed by those affected by the rare disease atypical HUS.
Global aHUS Action for 2021 Rare Disease Day
aHUS Alliance Global Action, update - On 28 February 2021 our slideshow launched, featuring 107 very special people from…
aHUS project for Rare Disease Day 2020
Atypical HUS: 2020 Rare Disease Day project by the aHUS Alliance. What do aHUS patients & family caregivers ‘see’ as needs for improvement or envision as future advancements for aHUS through 2020?
Rare Disease Day: Atypical HUS in 2020
Article No. 302 7 December 2019 Rare Disease Day Looking Ahead: What Atypical HUS Community Sees for 2020 …
No one said it would be easy
The reluctant advocate story continues: aHUSUK had received the Evaluation Consideration Document the week before Rare Disease Day 2014 and we…