In honor of this year’s Rare Disease Day on February 28, the American Kidney Fund (AKF) will be hosting “Rare Disease Spotlight: Diagnosis, treatment and management of aHUS.”
Part of the AKF’s educational webinar series which convenes leading subject-matter experts, patient advocates and organizational partners, the series focus is to share practical advice and guidance. It’s great to have a webinar which will focus on atypical hemolytic uremic syndrome, bringing more visibility to issues and information key to those who deal with this very rare disease.
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Time & Date:
Monday 28 February 2022 at 1 pm EST
Join in conversation and get your questions about atypical HUS answered by
• Bradley Dixon, MD, FASN – Associate Professor of Pediatrics and Medicine at the University of Colorado School of Medicine and Children’s Hospital Colorado
• Jeff Schmidt – Member of the aHUS Alliance, a global organization that supports those affected by aHUS around the world. Jeff has a daughter with aHUS and is passionate about helping the global aHUS community.
Open to a worldwide audience and the aHUS global community, you can register at the link below
This AKF educational webinar program features atypical HUS, and is sponsored by Alexion (Alexion AstraZeneca Rare Disease). Please consult your own medical team regarding care plans and/or personalized impact of information presented during the webinar.
About the American Kidney Fund
The American Kidney Fund (AKF) fights kidney disease on all fronts as the nation’s leading kidney nonprofit. AKF works on behalf of the 37 million Americans living with kidney disease, and the millions more at risk, with an unmatched scope of programs that support people wherever they are in their fight against kidney disease—from prevention through transplant. FMI visit KidneyFund.org
About atypical HUS & aHUS Alliance Global Action
Atypical HUS is a rare disease affecting only a handful of people per million, and can occur in people of any age with episodes of activity that range dramatically in duration and severity.
Tiny clots clog small blood vessels throughout the body during aHUS activity, which can damage vital organs such as the kidneys, heart, lungs, or brain. Red blood cell destruction and decrease in platelets due to clot formation can negatively impact body functions related to vision, the GI system, cognitive abilities, and more.
There’s no diagnostic test for atypical HUS to set it apart from other medical conditions which exhibit similar clotting issues (thrombotic microangiopathy, TMA). Learn more about aHUS in our Info Centre.
Follow aHUS global advocacy on:
aHUS Global Advocate – Keep current with our free Newsletter
Join in! aHUS Awareness Day
annually on 24 September, follow the campaign on Twitter @aHUS24Sept