aHUS Clinicians & Investigators
Atypical HUS is a very rare and complex disease. We thank those who collaborate on global aHUS research efforts, and extend…
“Good News” from talking about aHUS and Pregnancy
Earlier this year ,when the alliance was responding to the Rare Disease Day video questions , aHUS Patient Megan contacted the…
#TMABoston Live
Post-Event Update:Presentations were videotaped, and appear on ourAtypical HUS Clinical Channel as the key asset of 2017 aHUS Awareness Day (24…
AGENDA for TMA & aHUS Symposium in Boston 24 Aug 2017
Post-Event Update: Presentations were videotaped, and appear on YouTube on the aHUS Alliance Atypical HUS Clinical Channel .…
The B of the aHUS Bang ends the Rare Disease Day Video
Rares of Romania asked the question " How can I understand in simple words what is happening in my body during this…
Thrombotic Microangiopathy Symposium in Boston – 24 Aug 2017
Thrombotic Microangiopathy Symposium: Through the Lens of aHUS 24 August 2017 in Boston Post-Event Update: LIVE BLOG: At…
aHUS Perspectives – an Interview with Dr Gianluigi Ardissino
The aHUS Alliance presents an informal interview with Dr. Gianluigi Ardissino, a clinician and researcher affiliated with Centro SEU in Milan, Italy, with insight into the interface of HUS and aHUS.
Thinking aHUS gets there in the end
Like many with rare diseases getting a diagnosis is a major issue for aHUS patients. Although it is much speedier than…
aHUS alliance website one year on
The aHUS alliance website has reached its first anniversary. Although some of the first blogs have dates preceding 28 May 2016…