aHUS care pathway
The care pathway for aHUS patients has been looked at in detail in Global Action’s Diagnosis Process Study ( for reports…
COVID 19 triggers aHUS
Article No. 444 12 July 2021 Not unexpectedly, as aHUS Global Action had postulated it in March last year, a COVID…
Help needed to join the aHUS dots
Article No 395 25 November 2020 This was a call to action to the Global aHUS community.( Results to come) It…
TMA 65 YEARS OLD TODAY
It was 65 years ago to day that Prof Symmers taught the world to say TMA. Prof Symmers, or Professor William…
World Thrombosis Day 2017
Today is World Thrombosis Day. aHUS is the result of thrombosis in the small blood vessels – thrombotic microangiopathy, or TMA.…
Thinking More About aHUS Today.
So aHUS is a genetic disease caused by the aHUS gene. Many people talk about "the aHUS gene" as though it…
Videos about aHUS which make you think differently
Last month the aHUS alliance in partnership with Andrew Siedlecki , the USA National Coordinator for the aHUS Registry and other…
Thinking aHUS gets there in the end
Like many with rare diseases getting a diagnosis is a major issue for aHUS patients. Although it is much speedier than…
Is it aHUS? Perhaps it’s TTP, STEC-HUS, or Another TMA
Feeling sick is difficult enough without going to a doctor’s appointment and learning that the diagnosis might possibly be the…