Why aHUS for them not me?
Hey GA tell me why aHUS for them and not me? Oh hi again. Who is them?Some of my family they…
Lessons about aHUS Patient Advocacy
In the past this website featured a series of blogs which covered the story of a patient advocacy organisation in the…
The aHUS Global Advocate Newsletter: 7th Edition
Written by an international team of aHUS patients and caregivers, the newsletter is an objective look at information and topics important…
Silver Lining: from aHUS Diagnosis to Dialysis Centre Entrepreneur
We’re excited to announce the release of this new book: Silver Lining: Overcoming Adversity to Build NephroPlus- India’s Largest Dialysis Provider …
Global aHUS at the Baltimore Conference
Global Action will be attending the Foundation’s Baltimore aHUS patients conference from the 28th to the 30th April. Here you will…
4th Edition of Indian Dialysis Olympiad held in New Delhi, India
Who said dialysis patients cannot play a sport? Given good quality dialysis, dialysis patients can do everything that people with healthy…
What’s New in aHUS Research – April 2023
It’s exciting to report that in the first months of 2023 there’s been a raft of new publications which are important…
The ethics of aHUS patient involvement.
Over the past 10 years the movement of involvement of patients in the development of medicines, their regulation and use has…
Iceland and aHUS
Nearly 400,000 people live in Iceland. At normal prevalence levels there should be two aHUS patients. There are at least three…
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