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Read more about the article Silver Lining: from aHUS Diagnosis to Dialysis Centre Entrepreneur

Silver Lining: from aHUS Diagnosis to Dialysis Centre Entrepreneur

  • Post author:Linda Burke
  • Post published:May 8, 2023
  • Post category:Featured
  • Post comments:0 Comments

We’re excited to announce the release of this new book: Silver Lining: Overcoming Adversity to Build NephroPlus- India’s Largest Dialysis Provider …

Continue ReadingSilver Lining: from aHUS Diagnosis to Dialysis Centre Entrepreneur
Read more about the article Global aHUS at the Baltimore Conference

Global aHUS at the Baltimore Conference

  • Post author:Len Woodward
  • Post published:April 28, 2023
  • Post category:News
  • Post comments:0 Comments

Global Action will be attending the Foundation’s Baltimore aHUS patients conference from the 28th to the 30th April. Here you will…

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Read more about the article 4th Edition of Indian Dialysis Olympiad held in New Delhi, India

4th Edition of Indian Dialysis Olympiad held in New Delhi, India

  • Post author:Kamal Shah
  • Post published:April 25, 2023
  • Post category:Featured
  • Post comments:0 Comments

Who said dialysis patients cannot play a sport? Given good quality dialysis, dialysis patients can do everything that people with healthy…

Continue Reading4th Edition of Indian Dialysis Olympiad held in New Delhi, India
Read more about the article What’s New in aHUS Research – April 2023

What’s New in aHUS Research – April 2023

  • Post author:Linda Burke
  • Post published:April 18, 2023
  • Post category:Featured
  • Post comments:0 Comments

It’s exciting to report that in the first months of 2023 there’s been a raft of new publications which are important…

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Read more about the article The ethics of aHUS patient involvement.

The ethics of aHUS patient involvement.

  • Post author:Len Woodward
  • Post published:April 16, 2023
  • Post category:Featured/News
  • Post comments:0 Comments

Over the past 10 years the movement of involvement of patients in the development of medicines, their regulation and use has…

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Read more about the article Iceland and aHUS

Iceland and aHUS

  • Post author:Len Woodward
  • Post published:April 8, 2023
  • Post category:News
  • Post comments:0 Comments

Nearly 400,000 people live in Iceland. At normal prevalence levels there should be two aHUS patients. There are at least three…

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Read more about the article Nephmadness and aHUS

Nephmadness and aHUS

  • Post author:Len Woodward
  • Post published:March 27, 2023
  • Post category:News
  • Post comments:0 Comments

In March each year the nephrology community, supported by the American Journal of Kidney Disease, engages in an educational initiative called…

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Read more about the article TURKEY: Association of the Fight against PNH and aHUS Diseases

TURKEY: Association of the Fight against PNH and aHUS Diseases

  • Post author:Linda Burke
  • Post published:March 27, 2023
  • Post category:Featured
  • Post comments:0 Comments

We’re pleased to feature the outstanding work of the Turkish PNH & aHUS advocacy group PNH VE AHÜS İLE MÜCADELE Derneği.  …

Continue ReadingTURKEY: Association of the Fight against PNH and aHUS Diseases
Read more about the article aHUS meningococcal infection – vigilance essential

aHUS meningococcal infection – vigilance essential

  • Post author:Len Woodward
  • Post published:March 23, 2023
  • Post category:Uncategorized
  • Post comments:0 Comments

All aHUS patients know that when on complement inhibitor treatment they are at risk of meningococcal infection. Do they? Of course,…

Continue ReadingaHUS meningococcal infection – vigilance essential
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