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Read more about the article Advocacy punching  above its aHUS weight

Advocacy punching above its aHUS weight

  • Post author:Len Woodward
  • Post published:January 16, 2022
  • Post category:News
  • Post comments:0 Comments

There is so much chat these days about what things should be like after the pandemic. Though it does seem at…

Continue ReadingAdvocacy punching above its aHUS weight
Read more about the article TÜRKİYE’DE Kİ; aHÜS H; ASTALIĞINA GENEL BİR BAKIŞ!

TÜRKİYE’DE Kİ; aHÜS H; ASTALIĞINA GENEL BİR BAKIŞ!

  • Post author:Len Woodward
  • Post published:January 5, 2022
  • Post category:News
  • Post comments:0 Comments

Atipik Hemolitik Üremik Sendrom kısaca aHÜS, vücudumuzun bağışıklık sisteminin ana elemanlarından olan ana savunma sisteminin de ki bir parçanın regülasyon bozukluğu…

Continue ReadingTÜRKİYE’DE Kİ; aHÜS H; ASTALIĞINA GENEL BİR BAKIŞ!
Read more about the article COVID and aHUS at the end of 2021

COVID and aHUS at the end of 2021

  • Post author:Len Woodward
  • Post published:December 31, 2021
  • Post category:News
  • Post comments:0 Comments

As the year ends we are still living with COVID. It seems like it is never ending. And it is and…

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Read more about the article aHUS Project for 2022 Rare Disease Day

aHUS Project for 2022 Rare Disease Day

  • Post author:ahusalliance
  • Post published:December 29, 2021
  • Post category:Uncategorized
  • Post comments:0 Comments

Rare Disease Day 2022: aHUS Alliance Global Action to mark the day with a patient-centered video that focuses on questions posed by those affected by the rare disease atypical HUS.

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Read more about the article aHUS Diagnosis Process – Report 2

aHUS Diagnosis Process – Report 2

  • Post author:Len Woodward
  • Post published:December 18, 2021
  • Post category:Featured
  • Post comments:0 Comments

The second article in the series about the aHUS Diagnosis Process has been published on the website today. Research made possible…

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Read more about the article It’s Time to re-Define aHUS Patient Engagement

It’s Time to re-Define aHUS Patient Engagement

  • Post author:Linda Burke
  • Post published:December 13, 2021
  • Post category:Uncategorized
  • Post comments:0 Comments

Reaching out to Bridge Current Gaps As complement research has progressed and more is understood about thrombotic microangiopathy, it’s interesting that…

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Read more about the article aHUS Trial Watch 14

aHUS Trial Watch 14

  • Post author:Len Woodward
  • Post published:November 27, 2021
  • Post category:News
  • Post comments:0 Comments

A trial has been designed by Alexion to examine the efficacy of Ravulizumab to treat those with a Thrombotic Microngiopathy ,…

Continue ReadingaHUS Trial Watch 14
Read more about the article One genetic problem but two diseases

One genetic problem but two diseases

  • Post author:Len Woodward
  • Post published:November 18, 2021
  • Post category:News
  • Post comments:0 Comments

Take "diacylglycerol kinase " and add a "syndrome" throw in a letter from the Greek alphabet " ε" and you have…

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Read more about the article Atypical HUS CAREGIVERS

Atypical HUS CAREGIVERS

  • Post author:Linda Burke
  • Post published:November 13, 2021
  • Post category:Uncategorized
  • Post comments:0 Comments

Atypical HUS families emphasize and embody the ‘care’ portion of the word ‘caregiver’. Many of those caring for someone with atypical…

Continue ReadingAtypical HUS CAREGIVERS
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