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Read more about the article aHUS Research Update: Dec 2020

aHUS Research Update: Dec 2020

  • Post author:Linda Burke
  • Post published:December 16, 2020
  • Post category:Featured
  • Post comments:0 Comments

What's new in atypical HUS Research & Publications? aHUS Alliance Global Action - Keeping you updated with new aHUS research as of December 2020.

Continue ReadingaHUS Research Update: Dec 2020
Read more about the article AstraZenaca to buy Alexion

AstraZenaca to buy Alexion

  • Post author:ahusalliance
  • Post published:December 12, 2020
  • Post category:Featured
  • Post comments:0 Comments

Article No. 403 12 December 2020 News has emerged, in the past two hours, that Alexion is to be bought for…

Continue ReadingAstraZenaca to buy Alexion
Read more about the article TMA-Semantics are important

TMA-Semantics are important

  • Post author:ahusalliance
  • Post published:December 12, 2020
  • Post category:Featured
  • Post comments:0 Comments

Article No. 402 12 December 2020 Just over a year ago aHUS Global Action featured a series of articles "aHUS is…

Continue ReadingTMA-Semantics are important
Read more about the article A day in an aHUS life

A day in an aHUS life

  • Post author:ahusalliance
  • Post published:December 11, 2020
  • Post category:Featured/Uncategorized
  • Post comments:0 Comments

Article No. 401 11 December 2020 When it comes to those who have aHUS in their lives , everyone has some…

Continue ReadingA day in an aHUS life
Read more about the article Withdrawal evidence patients need to know

Withdrawal evidence patients need to know

  • Post author:ahusalliance
  • Post published:December 5, 2020
  • Post category:Featured/Uncategorized
  • Post comments:0 Comments

Article No. 400 5 December 2020 Whilst on the topic of safe withdrawal from eculizumab treatment  ( see previous articles 398…

Continue ReadingWithdrawal evidence patients need to know
Read more about the article “StopEcu” – the French Study reports

“StopEcu” – the French Study reports

  • Post author:ahusalliance
  • Post published:December 4, 2020
  • Post category:Uncategorized
  • Post comments:0 Comments

Article No. 399 4 December 2020 Just as the previous blog (No. 398) on the same topic was being written and…

Continue Reading“StopEcu” – the French Study reports
Read more about the article Eculizumab withdrawal risk profiling

Eculizumab withdrawal risk profiling

  • Post author:ahusalliance
  • Post published:December 4, 2020
  • Post category:Uncategorized
  • Post comments:0 Comments

Article No. 398 4 December 2020 In its previous article "Dip into ASH 2020" Global Action highlighted research results relating to…

Continue ReadingEculizumab withdrawal risk profiling
Read more about the article Dip into ASH 2020

Dip into ASH 2020

  • Post author:ahusalliance
  • Post published:November 28, 2020
  • Post category:Featured/Uncategorized
  • Post comments:0 Comments

Article No. 397 28 November 2020   The second major conference at this time of year with research results which matter…

Continue ReadingDip into ASH 2020
Read more about the article Atypical HUS: Not Like the Others

Atypical HUS: Not Like the Others

  • Post author:Linda Burke
  • Post published:November 26, 2020
  • Post category:Featured
  • Post comments:0 Comments

Patient involvement needs to be integrated across all areas of research and at early stages of planning clinical trials. When patient engagement is in the atypical HUS arena, what considerations make outreach a bit different for advocacy regarding this ultra rare disease?

Continue ReadingAtypical HUS: Not Like the Others
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