aHUS or TMA syndromes consensus
Article No. 316 1 February 2020 The alliance has featured what are known as aHUS consensus or status publications about the…
Spotlight on Ravulizumab 2- use in specific populations
Article No. 315 30 January 2020 Following on from the first spotlight on ravulizumab article about its dosing (click here to…
aHUS- when PEX is a success
Article No. 314 28 January 2020 One of the interests of the aHUS patient community is whether remission from treatment can continue…
Undetermined Significance yet aHUS
Article No. 313 26 January 2020 During the alliance's series of articles late last year about the renaming of aHUS we…
Global aHUS Registry: What’s it all About?
An article on FAQ regarding the aHUS global registry, including information gathered by atypical HUS patient advocates who represent the patient voice at the registry's Scientific Advisory Board meetings.
Spotlight on Ravulizumab 1- Dosing
Article No. 311 21 January 2020 Information about Ravulizumab cwvz has featured regularly on the alliance website during its development to…
Some new ERKNet News
Article No. 310 16 January 2020 The alliance has featured ERKNet in several news articles in recent years. ( Note :…
Not the one and only in 2020
Article No. 309 10 January 2020 At the end of next month it will be Rare Disease Day 2020. ”So what!?”…
Transitioning Teens to Adult Nephrology Care
As children with kidney disease grow to become adolescents, their medical care often changes from a pediatric to adult nephrology care setting - what common issues for teen patients surround this transition? A look at social, emotional, and medical aspects.
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