2019 aHUS Awareness Day - Atypical HUS families around the world are invited to participate in this aHUS Alliance outreach & advocacy project for 24 September. Slideshow project details for patients and caregivers affected by the rare disease aHUS.
A new definition of Health: "Health as the ability to adapt and self-manage, in light of the physical, emotional and social…
The kidneys are wonder-organs. They do so many different things. They impact so many life-processes. It is impossible for individuals…
14 July 2019 Dear Alexion On 1 January 2018 the aHUS alliance wrote an open letter to you ( click…
Atypical HUS patients who have progressed to kidney failure and do not have access to a complement inhibitor like Eculizumab have…
When the six European national aHUS organisations gathered in February 2013 for the first meeting of what was to become the…
Cemdisiran has been a possible candidate drug for aHUS for some time. Alnylam the pharmaceutical company responsible for its development, withdrew…
The aHUS alliance has a long association with the Global aHUS Registry and has a place on its Scientific Advisory Board…
(Disclaimer: The information provided here is only indicative. Please check with your doctor or dietician for individual "best practices". There is no single…