A Seminal article on Global aHUS in 2019
An article about aHUS was published yesterday. It appeared in the International Journal of Nephrology and Renovascular Disease. Its title is…
Really, isn’t everyone aware of aHUS by now?
Look at any charity/ not for profit organisation related to health and the term “awareness” will be there in what they…
An aHUS Patient Entrepreneur ?
After reading an inspirational article* about Kamal Shah , which featured on the alliance’s social media recently, I was reminded about…
Historical branches-aHUS in the Family
aHUS is known as a family illness. It was seen as something different from HUS when different family members experienced it…
Transplants, aHUS and eculizumab
The alliance has frequently featured articles about kidney transplants for those with aHUS. It was its top topic identified as a…
aHUS Registry Report: (aHUS) Registry
The alliance relationship with the atypical Hemolytic-Uremic Syndrome( aHUS) Registry (NCT01522183) is now well into its fifth year. This observational non…
Eculizumab Safety
Following on from its recent article about the safety of eculizumab ( see here ) the alliance has looked at two…
“Away from home” Eculizumab infusions
Within the aHUS Patients' Research Agenda is a topic about how aHUS affects work and school. A big question with so…
aHUS Awareness Day 2019 -Video
2019 aHUS Awareness Day - Atypical HUS families around the world are invited to participate in this aHUS Alliance outreach & advocacy project for 24 September. Slideshow project details for patients and caregivers affected by the rare disease aHUS.
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