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Author: ahusalliance

This author has written 437 articles
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Read more about the article Fatal non attraction for aHUS
OLYMPUS DIGITAL CAMERA

Fatal non attraction for aHUS

  • Post author:ahusalliance
  • Post published:October 27, 2019
  • Post category:Uncategorized
  • Post comments:0 Comments

Everyone has heard of magnetism. It is a physical force that attracts two objects together. It surrounds us, The earth is…

Continue ReadingFatal non attraction for aHUS
Read more about the article 10/18/19- FDA DECIDES

10/18/19- FDA DECIDES

  • Post author:ahusalliance
  • Post published:October 18, 2019
  • Post category:Featured
  • Post comments:0 Comments

Today is significant for everyone with aHUS. Today the US Food & Drugs Administration ( FDA ) announced its decision on…

Continue Reading10/18/19- FDA DECIDES
Read more about the article Small Molecule Factor D Inhibitors – Right for aHUS?

Small Molecule Factor D Inhibitors – Right for aHUS?

  • Post author:ahusalliance
  • Post published:October 9, 2019
  • Post category:Featured
  • Post comments:0 Comments

Out of more than 7000 rare diseases, only an estimated 5% have an approved treatment or therapy (Rare Disease Day, FAQs).…

Continue ReadingSmall Molecule Factor D Inhibitors – Right for aHUS?
Read more about the article The right choice -Pregnancy and aHUS

The right choice -Pregnancy and aHUS

  • Post author:ahusalliance
  • Post published:October 5, 2019
  • Post category:Featured
  • Post comments:0 Comments

It  is reckoned that 1 in 25000 pregnancies are complicated by thrombotic microangiopathy (TMA). That is 40 in a million pregnancies.…

Continue ReadingThe right choice -Pregnancy and aHUS
Read more about the article aHUS Day 2019

aHUS Day 2019

  • Post author:ahusalliance
  • Post published:September 29, 2019
  • Post category:Featured
  • Post comments:0 Comments

2019 aHUS Awareness Day, an overview of the 5th annual 24 Sept campaign to raise awareness for the ultra rare disease atypical HUS.

Continue ReadingaHUS Day 2019
Read more about the article A little aHUS Awareness  means a lot

A little aHUS Awareness means a lot

  • Post author:ahusalliance
  • Post published:September 25, 2019
  • Post category:Uncategorized
  • Post comments:0 Comments

As the world slips into September 25th,  another aHUS Awareness Day passes. From the aHUS alliance‘s view it was the best…

Continue ReadingA little aHUS Awareness means a lot
Read more about the article Awareness of the aHUS Family

Awareness of the aHUS Family

  • Post author:ahusalliance
  • Post published:September 24, 2019
  • Post category:Featured
  • Post comments:0 Comments

Families are important . Families are important to those affected by aHUS. aHUS is a familial Disease. Families are important for…

Continue ReadingAwareness of the aHUS Family
Read more about the article Alexion holds Blood Drive for aHUS Day 2019

Alexion holds Blood Drive for aHUS Day 2019

  • Post author:ahusalliance
  • Post published:September 22, 2019
  • Post category:Featured
  • Post comments:0 Comments

Alexion Pharmaceuticals holds corporate blood donation drive to mark aHUS Awareness Day, 24 Sept 2019.

Continue ReadingAlexion holds Blood Drive for aHUS Day 2019
Read more about the article aHUS at the Cleveland Rare Genetic Disease Symposium

aHUS at the Cleveland Rare Genetic Disease Symposium

  • Post author:ahusalliance
  • Post published:September 17, 2019
  • Post category:Featured
  • Post comments:0 Comments

Cleveland Clinic Children's held its Rare Genetic Disease Symposium on 12 Sept 2019, with 3 aHUS-specific presentations to include the aHUS Alliance on the topic of 'The Patients' Perspective'.

Continue ReadingaHUS at the Cleveland Rare Genetic Disease Symposium
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