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Author: ahusalliance

This author has written 437 articles
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Read more about the article “Good News” from talking about aHUS and Pregnancy

“Good News” from talking about aHUS and Pregnancy

  • Post author:ahusalliance
  • Post published:September 12, 2017
  • Post category:Featured
  • Post comments:0 Comments

Earlier this year ,when the alliance was responding to the Rare Disease Day video questions , aHUS Patient Megan contacted  the…

Continue Reading“Good News” from talking about aHUS and Pregnancy
Read more about the article aHUS in Poland – United in Advocacy

aHUS in Poland – United in Advocacy

  • Post author:ahusalliance
  • Post published:September 7, 2017
  • Post category:Featured/Uncategorized
  • Post comments:0 Comments

    We welcome the aHUS community in Poland as the newest of aHUS patient organizations uniting with other nations under…

Continue ReadingaHUS in Poland – United in Advocacy
Read more about the article aHUS and the Red Balloon

aHUS and the Red Balloon

  • Post author:ahusalliance
  • Post published:August 31, 2017
  • Post category:Featured
  • Post comments:0 Comments

It is just 25 days to aHUS Awareness Day 2017 and patients and patients' organsations around the world will be making…

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Read more about the article #TMABoston Live

#TMABoston Live

  • Post author:ahusalliance
  • Post published:August 24, 2017
  • Post category:Featured
  • Post comments:0 Comments

Post-Event Update:Presentations were videotaped, and appear on ourAtypical HUS Clinical Channel as the key asset of 2017 aHUS Awareness Day (24…

Continue Reading#TMABoston Live
Read more about the article Patients as Partners

Patients as Partners

  • Post author:ahusalliance
  • Post published:August 5, 2017
  • Post category:Featured
  • Post comments:0 Comments

Patients are at the heart of healthcare.  Patients are the recipients of medical care, and the participants in research and clinical…

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Read more about the article aHUS Awareness Day 2017 – Global Video Project

aHUS Awareness Day 2017 – Global Video Project

  • Post author:ahusalliance
  • Post published:July 24, 2017
  • Post category:Uncategorized
  • Post comments:0 Comments

        The 3rd international aHUS Awareness Day is just 2 months away. The world will join together on…

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Read more about the article Complement-mediated TMA awareness- did you know it was aHUS?

Complement-mediated TMA awareness- did you know it was aHUS?

  • Post author:ahusalliance
  • Post published:July 21, 2017
  • Post category:Featured
  • Post comments:0 Comments

Earlier this year the website featured an article ( click here )about the nomenclature used to described aHUS. Clinical articles now…

Continue ReadingComplement-mediated TMA awareness- did you know it was aHUS?
Read more about the article AGENDA for TMA & aHUS Symposium in Boston 24 Aug 2017

AGENDA for TMA & aHUS Symposium in Boston 24 Aug 2017

  • Post author:ahusalliance
  • Post published:July 9, 2017
  • Post category:Featured
  • Post comments:0 Comments

    Post-Event Update:   Presentations were videotaped, and appear on YouTube on the aHUS Alliance Atypical HUS Clinical Channel .…

Continue ReadingAGENDA for TMA & aHUS Symposium in Boston 24 Aug 2017
Read more about the article Genetic testing for all? :Discuss

Genetic testing for all? :Discuss

  • Post author:ahusalliance
  • Post published:July 6, 2017
  • Post category:Featured
  • Post comments:0 Comments

* To have  genetic tests for all aHUS patients and families featured in the Rare Disease Day video ( see here).…

Continue ReadingGenetic testing for all? :Discuss
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