TURKEY: Association of the Fight against PNH and aHUS Diseases
We’re pleased to feature the outstanding work of the Turkish PNH & aHUS advocacy group PNH VE AHÜS İLE MÜCADELE Derneği. …
The aHUS Global Advocate: Our Vol 6 Newsletter
We’re pleased to announce that our latest edition of The aHUS Global Advocate newsletter has been released (Vol 6, Jan 2023)…
What’s New in aHUS Research? Jan 2023 Edition
Sometimes there are fascinating articles related to atypical HUS which people might miss, and it’s then that it’s particularly helpful to…
aHUS Global Action – Meet Trustee K Grey
As advocates for the rare disease atypical haemolytic uraemic syndrome (atypical HUS), there’s only one group of patients and caregivers whose…
Rare Disease Day 2023- aHUS Community Project
On February 28, 2023, the world will join together to raise awareness for rare diseases like atypical HUS. Recognized annually on…
Atypical HUS Research: NOV 2022 New Additions
There are important publications about atypical HUS which people might miss given that key search terms may scan but miss the…
Atypical HUS in Hong Kong
We’re pleased to offer a third article in our ‘Atypical HUS around the World’ series, which highlights aHUS in Hong Kong…
Maternal Fetal Medicine: Collaborative Partnerships in TMA Care
We were pleased to recently welcome Dr Richard Burwick (California, USA) to our global network of aHUS clinicians and investigators. Some…
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