aHUS Patient Meeting Aug 2022 – USTMA
Atypical HUS patients, family caregivers, and aHUS advocates are invited to attend a full day virtual meeting which will be held…
MORL: An Impact on aHUS Genetics
What’s involved in aHUS genetic testing, and are all labs alike? The answer to the first is quite complex, and no…
Atypical HUS – an Interview with Dr Brad Lewis of Machaon Diagnostics
We’re pleased to feature this interview with Dr Brad Lewis, Medical Director of Machaon Diagnostics. A hematologist with background in biochemistry…
aHUS Day 2022: Awareness Through Togetherness
The 8th international aHUS Awareness Day will occur on 24 September 2022, with this year’s theme as ‘Awareness through Togetherness’. We’re…
Atypical HUS: Listen, Comprehend, Act
It’s been quite an unsettling end to the first half of 2022 within the atypical HUS community, as July 2022 has…
Accessible to all: aHUS Research
Atypical HUS Research, view over 900 aHUS-specific publications categorized by topic, compiled by the aHUS Alliance Global Action team.
Atypical HUS PROs: Patient Reported Outcomes
What are patient reported outcomes (PROS)? The aHUS Alliance Global Action team look at PROs and their importance in the aHUS space.
RD Day 2022: aHUS Webinar hosted by AKF
In honor of this year's Rare Disease Day on February 28, the American Kidney Fund (AKF) will be hosting “Rare Disease…
It’s Time to re-Define aHUS Patient Engagement
Reaching out to Bridge Current Gaps As complement research has progressed and more is understood about thrombotic microangiopathy, it’s interesting that…