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Author: Linda Burke

This author has written 81 articles
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Read more about the article aHUS in New Zealand

aHUS in New Zealand

  • Post author:Linda Burke
  • Post published:August 24, 2022
  • Post category:Featured
  • Post comments:0 Comments

We're so pleased to highlight atypical HUS in New Zealand, with this article written by aHUS family caregiver Anna Benson. No…

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Read more about the article aHUS Patient Meeting Aug 2022 – USTMA

aHUS Patient Meeting Aug 2022 – USTMA

  • Post author:Linda Burke
  • Post published:August 16, 2022
  • Post category:Featured
  • Post comments:0 Comments

Atypical HUS patients, family caregivers, and aHUS advocates are invited to attend a full day virtual meeting which will be held…

Continue ReadingaHUS Patient Meeting Aug 2022 – USTMA
Read more about the article MORL: An Impact on aHUS Genetics

MORL: An Impact on aHUS Genetics

  • Post author:Linda Burke
  • Post published:August 16, 2022
  • Post category:Featured
  • Post comments:0 Comments

What’s involved in aHUS genetic testing, and are all labs alike? The answer to the first is quite complex, and no…

Continue ReadingMORL: An Impact on aHUS Genetics
Read more about the article Atypical HUS – an Interview with Dr Brad Lewis of Machaon Diagnostics

Atypical HUS – an Interview with Dr Brad Lewis of Machaon Diagnostics

  • Post author:Linda Burke
  • Post published:July 17, 2022
  • Post category:Featured
  • Post comments:0 Comments

We’re pleased to feature this interview with Dr Brad Lewis, Medical Director of Machaon Diagnostics. A hematologist with background in biochemistry…

Continue ReadingAtypical HUS – an Interview with Dr Brad Lewis of Machaon Diagnostics
Read more about the article aHUS Day 2022: Awareness Through Togetherness

aHUS Day 2022: Awareness Through Togetherness

  • Post author:Linda Burke
  • Post published:July 11, 2022
  • Post category:News
  • Post comments:2 Comments

The 8th international aHUS Awareness Day will occur on 24 September 2022, with this year’s theme as ‘Awareness through Togetherness’. We’re…

Continue ReadingaHUS Day 2022: Awareness Through Togetherness
Read more about the article Atypical HUS:  Listen, Comprehend, Act

Atypical HUS:  Listen, Comprehend, Act

  • Post author:Linda Burke
  • Post published:July 2, 2022
  • Post category:News
  • Post comments:0 Comments

It’s been quite an unsettling end to the first half of 2022 within the atypical HUS community, as July 2022 has…

Continue ReadingAtypical HUS:  Listen, Comprehend, Act
Read more about the article Accessible to all: aHUS Research

Accessible to all: aHUS Research

  • Post author:Linda Burke
  • Post published:June 22, 2022
  • Post category:News
  • Post comments:0 Comments

Atypical HUS Research, view over 900 aHUS-specific publications categorized by topic, compiled by the aHUS Alliance Global Action team.

Continue ReadingAccessible to all: aHUS Research
Read more about the article Atypical HUS PROs: Patient Reported Outcomes

Atypical HUS PROs: Patient Reported Outcomes

  • Post author:Linda Burke
  • Post published:March 18, 2022
  • Post category:Featured
  • Post comments:0 Comments

What are patient reported outcomes (PROS)? The aHUS Alliance Global Action team look at PROs and their importance in the aHUS space.

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Read more about the article RD Day 2022: aHUS Webinar hosted by AKF

RD Day 2022: aHUS Webinar hosted by AKF

  • Post author:Linda Burke
  • Post published:February 12, 2022
  • Post category:Uncategorized
  • Post comments:0 Comments

In honor of this year's Rare Disease Day on February 28, the American Kidney Fund (AKF) will be hosting “Rare Disease…

Continue ReadingRD Day 2022: aHUS Webinar hosted by AKF
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