Atypical HUS PROs: Patient Reported Outcomes
What are patient reported outcomes (PROS)? The aHUS Alliance Global Action team look at PROs and their importance in the aHUS space.
RD Day 2022: aHUS Webinar hosted by AKF
In honor of this year's Rare Disease Day on February 28, the American Kidney Fund (AKF) will be hosting “Rare Disease…
It’s Time to re-Define aHUS Patient Engagement
Reaching out to Bridge Current Gaps As complement research has progressed and more is understood about thrombotic microangiopathy, it’s interesting that…
Atypical HUS CAREGIVERS
Atypical HUS families emphasize and embody the ‘care’ portion of the word ‘caregiver’. Many of those caring for someone with atypical…
TMA: the Need for a Multidisciplinary Team Approach
Can MedEd Encourage Specialists to Form TMA Teams? Tiny clots which form in the body’s small blood vessels - in brief,…
2021 FAQs – FACTS about Atypical HUS
aHUS Awareness Day 2021 - Answers to FAQs Finding information about any rare disease is challenging, and perhaps more so for…
aHUS Relapse Epilogue: Patient Monitoring
People with atypical HUS need urgent care during periods of disease activity, with treatment when needed for as long as needed.…
aHUS Day 2021 – Global Atypical HUS Project
24 Sept 2021 will mark the 7th aHUS Awareness Day. Learn more about the 2021 aHUS day project to showcase global patient experiences.
Spotlight on aHUS Research – July 2021
Atypical HUS Research - What's New? The aHUS Alliance Global Action team has created a virtual 'library' of publications that are aHUS-specific and are categorized by topics such as diagnosis, treatment, genetics, thrombotic microangiopathy (TMA), complement, transplant, pregnancy, and more.