Atypical HUS CAREGIVERS
Atypical HUS families emphasize and embody the ‘care’ portion of the word ‘caregiver’. Many of those caring for someone with atypical…
Atypical HUS families emphasize and embody the ‘care’ portion of the word ‘caregiver’. Many of those caring for someone with atypical…
Can MedEd Encourage Specialists to Form TMA Teams? Tiny clots which form in the body’s small blood vessels - in brief,…
aHUS Awareness Day 2021 - Answers to FAQs Finding information about any rare disease is challenging, and perhaps more so for…
People with atypical HUS need urgent care during periods of disease activity, with treatment when needed for as long as needed.…
24 Sept 2021 will mark the 7th aHUS Awareness Day. Learn more about the 2021 aHUS day project to showcase global patient experiences.
Atypical HUS Research - What's New? The aHUS Alliance Global Action team has created a virtual 'library' of publications that are aHUS-specific and are categorized by topics such as diagnosis, treatment, genetics, thrombotic microangiopathy (TMA), complement, transplant, pregnancy, and more.
The 7th annual aHUS Awareness Day will be marked on 24 September 2021. Created by the aHUS Alliance in 2015 to raise awareness about this life-threatening rare disease, the theme for this year's aHUS Day is 'United in Advocacy'. Details the 2021 global campaign to raising awareness of atypical HUS.
Article No 441 18 June 2021 What topics and questions are likely to frame conversations about treating patients who…
Kidney Disease & Dental Health - aHUS Alliance Global Action looks at common topics for oral health and dental care, and provides an overview of what issue might be different or need special attention for people with kidney disease. A resource list is provided FMI.