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Read more about the article Diagnosis – aHUS Agenda Topic 3

Diagnosis – aHUS Agenda Topic 3

  • Post author:Len Woodward
  • Post published:November 23, 2023
  • Post category:Featured
  • Post comments:0 Comments

An accurate and rapid aHUS Diagnosis is essential to the best of aHUS patients health outcome. Our expert gave a response…

Continue ReadingDiagnosis – aHUS Agenda Topic 3
Read more about the article Familial Genetic Testing- aHUS Agenda Topic 2-

Familial Genetic Testing- aHUS Agenda Topic 2-

  • Post author:Len Woodward
  • Post published:November 23, 2023
  • Post category:Featured
  • Post comments:0 Comments

The series about the aHUS Research Agenda continues with second topic about familial genetic testing. When it comes to genetic testing…

Continue ReadingFamilial Genetic Testing- aHUS Agenda Topic 2-
Read more about the article TED Talk: Thriving Beyond Dialysis – A Journey of Hope and Resilience

TED Talk: Thriving Beyond Dialysis – A Journey of Hope and Resilience

  • Post author:Linda Burke
  • Post published:November 23, 2023
  • Post category:Featured
  • Post comments:0 Comments

What image comes to your mind when you hear the words ‘dialysis patient’? Most likely it’s not what you’ll see and…

Continue ReadingTED Talk: Thriving Beyond Dialysis – A Journey of Hope and Resilience
Read more about the article aHUS Global Advocate Newsletter: Nov 2023

aHUS Global Advocate Newsletter: Nov 2023

  • Post author:Linda Burke
  • Post published:November 21, 2023
  • Post category:Featured
  • Post comments:0 Comments

Keep up to date with the aHUS Global Advocate newsletter, Volume 8 edition for November 2023. FMI: Learn how to obtain your free subscription.

Continue ReadingaHUS Global Advocate Newsletter: Nov 2023
Read more about the article Cause Factors- aHUS Agenda Topic 1

Cause Factors- aHUS Agenda Topic 1

  • Post author:Len Woodward
  • Post published:November 19, 2023
  • Post category:Featured
  • Post comments:0 Comments

"What the heck hit me to cause that and why" are not an unreasonable question for aHUS patients to ask. Collectively…

Continue ReadingCause Factors- aHUS Agenda Topic 1
Read more about the article Is an aHUS patient research agenda worthwhile?

Is an aHUS patient research agenda worthwhile?

  • Post author:Len Woodward
  • Post published:November 19, 2023
  • Post category:Featured
  • Post comments:0 Comments

aHUS patients have a global research agenda. Work began on it in 2015 and after three iterations involving more than 200…

Continue ReadingIs an aHUS patient research agenda worthwhile?
Read more about the article Could there be a LONG aHUS like LONG COVID?

Could there be a LONG aHUS like LONG COVID?

  • Post author:Len Woodward
  • Post published:November 17, 2023
  • Post category:Featured
  • Post comments:2 Comments

We asked an expert “ Have you heard about Long COVID? Given the similarities could there be a LONG aHUS?” This…

Continue ReadingCould there be a LONG aHUS like LONG COVID?
Read more about the article KDIGO and aHUS treatment guidelines

KDIGO and aHUS treatment guidelines

  • Post author:Len Woodward
  • Post published:November 14, 2023
  • Post category:Featured
  • Post comments:2 Comments

KDIGO stands for Kidney Disease: Improving Global Outcomes. It is a global nonprofit organization that develops and publishes clinical practice guidelines…

Continue ReadingKDIGO and aHUS treatment guidelines
Read more about the article Atypical HUS Research: What’s New for Sept 2023?

Atypical HUS Research: What’s New for Sept 2023?

  • Post author:Linda Burke
  • Post published:September 18, 2023
  • Post category:Featured
  • Post comments:0 Comments

Atypical HUS research highlights for Sept 2023 - additions to our aHUS-specific research library

Continue ReadingAtypical HUS Research: What’s New for Sept 2023?
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