aHUS Global Advocate Newsletter: Nov 2023
Keep up to date with the aHUS Global Advocate newsletter, Volume 8 edition for November 2023. FMI: Learn how to obtain your free subscription.
Cause Factors- aHUS Agenda Topic 1
"What the heck hit me to cause that and why" are not an unreasonable question for aHUS patients to ask. Collectively…
Is an aHUS patient research agenda worthwhile?
aHUS patients have a global research agenda. Work began on it in 2015 and after three iterations involving more than 200…
Could there be a LONG aHUS like LONG COVID?
We asked an expert “ Have you heard about Long COVID? Given the similarities could there be a LONG aHUS?” This…
KDIGO and aHUS treatment guidelines
KDIGO stands for Kidney Disease: Improving Global Outcomes. It is a global nonprofit organization that develops and publishes clinical practice guidelines…
Atypical HUS Research: What’s New for Sept 2023?
Atypical HUS research highlights for Sept 2023 - additions to our aHUS-specific research library
Atypical HUS Facts: 2023 – Sept – 2024
Atypical HUS Fact Sheet: 2023 SEPT 2024 An informational resource from the global advocates at aHUS Alliance Global Action
The early days of aHUS Research (Before aHUS Endeavours Fade)
Global Action is privileged to present a second article in the series BEFORE aHUS ENDEAVOURS FADE. Celebrating the work of people…
Numbers about aHUS
The first thing about aHUS numbers is that there is no exact record of global aHUS patients anywhere . But research…
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