Stopping Treatment – aHUS Agenda Topic 7
Stopping aHUS treatment when no longer needed is a big decision for patients. Global Action put the patients research agenda question…
Genetic Testing -aHUS Agenda Topic 6
Genetic testing again a topic but this time it is of the patient; and is important for prognosis as well as…
Personalised Treatment Delivery – aHUS Agenda Topic 4
aHUS patients are likely to have personal preferences for a treatment and as more options become available a personalised approach for…
Meningococcal Infection – Symptoms
Complement Inhibitor users are the group at most risk of meningococcal infection according to the Centre for Disease Control in the…
Diagnosis – aHUS Agenda Topic 3
An accurate and rapid aHUS Diagnosis is essential to the best of aHUS patients health outcome. Our expert gave a response…
Familial Genetic Testing- aHUS Agenda Topic 2-
The series about the aHUS Research Agenda continues with second topic about familial genetic testing. When it comes to genetic testing…
TED Talk: Thriving Beyond Dialysis – A Journey of Hope and Resilience
What image comes to your mind when you hear the words ‘dialysis patient’? Most likely it’s not what you’ll see and…
aHUS Global Advocate Newsletter: Nov 2023
Keep up to date with the aHUS Global Advocate newsletter, Volume 8 edition for November 2023. FMI: Learn how to obtain your free subscription.
Cause Factors- aHUS Agenda Topic 1
"What the heck hit me to cause that and why" are not an unreasonable question for aHUS patients to ask. Collectively…
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