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Read more about the article Personalised Treatment Delivery – aHUS Agenda Topic 4

Personalised Treatment Delivery – aHUS Agenda Topic 4

  • Post author:Len Woodward
  • Post published:November 28, 2023
  • Post category:Featured
  • Post comments:2 Comments

aHUS patients are likely to have personal preferences for a treatment and as more options become available a personalised approach for…

Continue ReadingPersonalised Treatment Delivery – aHUS Agenda Topic 4
Read more about the article Meningococcal Infection – Symptoms

Meningococcal Infection – Symptoms

  • Post author:Len Woodward
  • Post published:November 27, 2023
  • Post category:Featured
  • Post comments:0 Comments

Complement Inhibitor users are the group at most risk of meningococcal infection according to the Centre for Disease Control in the…

Continue ReadingMeningococcal Infection – Symptoms
Read more about the article Diagnosis – aHUS Agenda Topic 3

Diagnosis – aHUS Agenda Topic 3

  • Post author:Len Woodward
  • Post published:November 23, 2023
  • Post category:Featured
  • Post comments:0 Comments

An accurate and rapid aHUS Diagnosis is essential to the best of aHUS patients health outcome. Our expert gave a response…

Continue ReadingDiagnosis – aHUS Agenda Topic 3
Read more about the article Familial Genetic Testing- aHUS Agenda Topic 2-

Familial Genetic Testing- aHUS Agenda Topic 2-

  • Post author:Len Woodward
  • Post published:November 23, 2023
  • Post category:Featured
  • Post comments:0 Comments

The series about the aHUS Research Agenda continues with second topic about familial genetic testing. When it comes to genetic testing…

Continue ReadingFamilial Genetic Testing- aHUS Agenda Topic 2-
Read more about the article TED Talk: Thriving Beyond Dialysis – A Journey of Hope and Resilience

TED Talk: Thriving Beyond Dialysis – A Journey of Hope and Resilience

  • Post author:Linda Burke
  • Post published:November 23, 2023
  • Post category:Featured
  • Post comments:0 Comments

What image comes to your mind when you hear the words ‘dialysis patient’? Most likely it’s not what you’ll see and…

Continue ReadingTED Talk: Thriving Beyond Dialysis – A Journey of Hope and Resilience
Read more about the article aHUS Global Advocate Newsletter: Nov 2023

aHUS Global Advocate Newsletter: Nov 2023

  • Post author:Linda Burke
  • Post published:November 21, 2023
  • Post category:Featured
  • Post comments:0 Comments

Keep up to date with the aHUS Global Advocate newsletter, Volume 8 edition for November 2023. FMI: Learn how to obtain your free subscription.

Continue ReadingaHUS Global Advocate Newsletter: Nov 2023
Read more about the article Cause Factors- aHUS Agenda Topic 1

Cause Factors- aHUS Agenda Topic 1

  • Post author:Len Woodward
  • Post published:November 19, 2023
  • Post category:Featured
  • Post comments:0 Comments

"What the heck hit me to cause that and why" are not an unreasonable question for aHUS patients to ask. Collectively…

Continue ReadingCause Factors- aHUS Agenda Topic 1
Read more about the article Is an aHUS patient research agenda worthwhile?

Is an aHUS patient research agenda worthwhile?

  • Post author:Len Woodward
  • Post published:November 19, 2023
  • Post category:Featured
  • Post comments:0 Comments

aHUS patients have a global research agenda. Work began on it in 2015 and after three iterations involving more than 200…

Continue ReadingIs an aHUS patient research agenda worthwhile?
Read more about the article Could there be a LONG aHUS like LONG COVID?

Could there be a LONG aHUS like LONG COVID?

  • Post author:Len Woodward
  • Post published:November 17, 2023
  • Post category:Featured
  • Post comments:2 Comments

We asked an expert “ Have you heard about Long COVID? Given the similarities could there be a LONG aHUS?” This…

Continue ReadingCould there be a LONG aHUS like LONG COVID?
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