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Read more about the article What’s New in aHUS Research? Jan 2023 Edition

What’s New in aHUS Research? Jan 2023 Edition

  • Post author:Linda Burke
  • Post published:January 30, 2023
  • Post category:Featured
  • Post comments:0 Comments

Sometimes there are fascinating articles related to atypical HUS which people might miss, and it’s then that it’s particularly helpful to…

Continue ReadingWhat’s New in aHUS Research? Jan 2023 Edition
Read more about the article aHUS Global Action – Meet Trustee K Grey

aHUS Global Action – Meet Trustee K Grey

  • Post author:Linda Burke
  • Post published:January 28, 2023
  • Post category:Featured
  • Post comments:1 Comment

As advocates for the rare disease atypical haemolytic uraemic syndrome (atypical HUS), there’s only one group of patients and caregivers whose…

Continue ReadingaHUS Global Action – Meet Trustee K Grey
Read more about the article aHUS what is really happening?

aHUS what is really happening?

  • Post author:Len Woodward
  • Post published:January 21, 2023
  • Post category:Featured/News
  • Post comments:0 Comments

Listening to some aHUS people on social media there is a sense that all are not satisfied with what is happening…

Continue ReadingaHUS what is really happening?
Read more about the article Rare Disease Day 2023- aHUS Community Project

Rare Disease Day 2023- aHUS Community Project

  • Post author:Linda Burke
  • Post published:January 8, 2023
  • Post category:Featured
  • Post comments:0 Comments

On February 28, 2023, the world will join together to raise awareness for rare diseases like atypical HUS. Recognized annually on…

Continue ReadingRare Disease Day 2023- aHUS Community Project
Read more about the article A ChatGPT about aHUS (and that Christmas question)

A ChatGPT about aHUS (and that Christmas question)

  • Post author:Len Woodward
  • Post published:December 22, 2022
  • Post category:Featured
  • Post comments:0 Comments

aHUS: Rare Blood Disorder This is a chat Global Action had with ChatGPT about aHUS. ChatGPT is a very new online…

Continue ReadingA ChatGPT about aHUS (and that Christmas question)
Read more about the article HST TMA Is It aHUS ?

HST TMA Is It aHUS ?

  • Post author:Len Woodward
  • Post published:December 14, 2022
  • Post category:Featured
  • Post comments:0 Comments

- An Hematopoietic Stem Cell Transplant (HSCT) is a way to treat some malignant and benign diseases. The transplant replaces disease…

Continue ReadingHST TMA Is It aHUS ?
Read more about the article Study of the aHUS Diagnosis Process- the “whys”, “whats” and “hows”

Study of the aHUS Diagnosis Process- the “whys”, “whats” and “hows”

  • Post author:Len Woodward
  • Post published:December 8, 2022
  • Post category:Featured/Uncategorized
  • Post comments:0 Comments

It is now over two years ago that Global Action began a major study of the aHUS Diagnosis Process, it is…

Continue ReadingStudy of the aHUS Diagnosis Process- the “whys”, “whats” and “hows”
Read more about the article Atypical HUS Research:  NOV 2022 New Additions

Atypical HUS Research:  NOV 2022 New Additions

  • Post author:Linda Burke
  • Post published:November 10, 2022
  • Post category:Featured
  • Post comments:0 Comments

There are important publications about atypical HUS which people might miss given that key search terms may scan but miss the…

Continue ReadingAtypical HUS Research:  NOV 2022 New Additions
Read more about the article Atypical HUS in Hong Kong

Atypical HUS in Hong Kong

  • Post author:Linda Burke
  • Post published:October 29, 2022
  • Post category:Featured/Uncategorized
  • Post comments:0 Comments

We’re pleased to offer a third article in our ‘Atypical HUS around the World’ series, which highlights aHUS in Hong Kong…

Continue ReadingAtypical HUS in Hong Kong
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