Idiopathic aHUS- so what ?
Hi Well that was another aHUS Awareness Day. Are you aware that 40% of aHUS patients have no known genetic cause…
Discriminatory rare disease reach on social media platforms
Is social media reach to aHUS patients and families hindered because of our disease’s rareness? Rare disease patients are so few…
More countries becoming neighbours in Global aHUS Town
Hiding in plain sight were neighbours Republic of Ireland and Iceland. The south of Ireland is well known as the place…
Thrombomodulin and TMA- complement inhibition or not?
It is said that thrombomodulin, or TM (AKA THBD) ,or CD141, plays only an indirect part in TMA (thrombotic microangiopathy) .…
More is known about Epysqli these days
The drug Epysqli or the version of eculizumab known as eculizumab-aagh has been available in some countries since 2024 . Although…
aHUS is an autoimmune disease?
So aHUS is an autoimmune disease? Well actually not but depending on the definition of aHUS there can be an autoimmune…
aHUS Awareness Day
2025 aHUS Awareness Day Project - Watch it at this Link https://bit.ly/2025aHUS24Sept aHUS AWARENESS DAY 24 September – an annual day…
Fairy Tale on the island of Camp-le-mont
Once upon a time, far away in the middle of a sparkling sea, there was a magical island called Camp-le-mont. Some…
Friendly Fire in aHUS
In the battlefield of the human body, atypical hemolytic uremic syndrome (aHUS) is a stark example of "friendly fire"—a term borrowed…