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Read more about the article Good complement goes aHUS bad

Good complement goes aHUS bad

  • Post author:ahusalliance
  • Post published:October 20, 2021
  • Post category:Featured
  • Post comments:0 Comments

  OK, so HUS is caused by e.coli toxins and aHUS results from Complement dysregulation. Both are thrombotic microangiopathies. HUS is…

Continue ReadingGood complement goes aHUS bad
Read more about the article Ravulizumab is not quite eculizumab

Ravulizumab is not quite eculizumab

  • Post author:Len Woodward
  • Post published:October 11, 2021
  • Post category:Featured
  • Post comments:0 Comments

Ravulizumab is becoming a treatment of choice for aHUS in countries where access is funded. Though eculizumab will still have a…

Continue ReadingRavulizumab is not quite eculizumab
Read more about the article Call to action USA aHUS Patients

Call to action USA aHUS Patients

  • Post author:Len Woodward
  • Post published:October 5, 2021
  • Post category:Featured
  • Post comments:0 Comments

In Article 462 notice was given of a study to help USA rare disease patients in general. and aHUS patients in…

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Read more about the article Withdrawal – need for a consensus

Withdrawal – need for a consensus

  • Post author:ahusalliance
  • Post published:September 8, 2021
  • Post category:Featured
  • Post comments:0 Comments

Article No. 457 Yet another article about the outcome of withdrawal of eculizumab treatment has appeared. It is not about a…

Continue ReadingWithdrawal – need for a consensus
Read more about the article aHUS website refreshed

aHUS website refreshed

  • Post author:ahusalliance
  • Post published:September 4, 2021
  • Post category:Featured
  • Post comments:0 Comments

Article No. 456 From today the aHUS alliance Global Action website has a new look. Just over five years since it…

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Read more about the article The final aHUS Awareness Day?

The final aHUS Awareness Day?

  • Post author:ahusalliance
  • Post published:September 1, 2021
  • Post category:Featured
  • Post comments:0 Comments

Article No. 455 Dr Carla Nester is well known to the hundreds of aHUS families in the USA, and elsewhere, who…

Continue ReadingThe final aHUS Awareness Day?
Read more about the article aHUS PREGNANCY COUNSELLING

aHUS PREGNANCY COUNSELLING

  • Post author:ahusalliance
  • Post published:August 31, 2021
  • Post category:Featured
  • Post comments:0 Comments

Article No. 454  aHUS triggered by pregnancy is relatively common and accounts for 16% of female ( 18 to 45 years)…

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Read more about the article aHUS Relapse Epilogue: Patient Monitoring

aHUS Relapse Epilogue: Patient Monitoring

  • Post author:Linda Burke
  • Post published:August 19, 2021
  • Post category:Featured
  • Post comments:0 Comments

People with atypical HUS need urgent care during periods of disease activity, with treatment when needed for as long as needed.…

Continue ReadingaHUS Relapse Epilogue: Patient Monitoring
Read more about the article aHUS nomenclature project group

aHUS nomenclature project group

  • Post author:ahusalliance
  • Post published:August 4, 2021
  • Post category:Featured
  • Post comments:0 Comments

Article No. 451 4 August 2021 Following on  swiftly from  Article No. 450 about the current babble of names and need…

Continue ReadingaHUS nomenclature project group
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