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Read more about the article The first ever aHUS research study patient cohort

The first ever aHUS research study patient cohort

  • Post author:Len Woodward
  • Post published:September 20, 2024
  • Post category:Featured
  • Post comments:0 Comments

The Global Action website has been featuring the pioneers and first events of aHUS history in its series Before aHUS Endeavours…

Continue ReadingThe first ever aHUS research study patient cohort
Read more about the article Atypical HUS Facts: 2024 – Sept – 2025

Atypical HUS Facts: 2024 – Sept – 2025

  • Post author:Linda Burke
  • Post published:September 11, 2024
  • Post category:Featured
  • Post comments:0 Comments

2024 – SEPT – 2025  Atypical HUS: Fact Sheets & Research Atypical Hemolytic Uremic Syndrome – a Rare Disease   Information…

Continue ReadingAtypical HUS Facts: 2024 – Sept – 2025
Read more about the article Social media and aHUS- Before aHUS endeavours fade

Social media and aHUS- Before aHUS endeavours fade

  • Post author:Len Woodward
  • Post published:September 6, 2024
  • Post category:Featured
  • Post comments:0 Comments

aHUS in the social media is now much more commonplace. In this latest article in the series “Before aHUS Endeavours Fade”…

Continue ReadingSocial media and aHUS- Before aHUS endeavours fade
Read more about the article Trial Watch 20- ClinicalTrials.eu

Trial Watch 20- ClinicalTrials.eu

  • Post author:Len Woodward
  • Post published:September 2, 2024
  • Post category:Featured
  • Post comments:0 Comments

The Global Action series “Trial Watch” has in the past covered several trials of treatments for aHUS patients and even some…

Continue ReadingTrial Watch 20- ClinicalTrials.eu
Read more about the article aHUS awareness day and aHUS alliance Global Action

aHUS awareness day and aHUS alliance Global Action

  • Post author:Len Woodward
  • Post published:August 21, 2024
  • Post category:Featured
  • Post comments:0 Comments

Introduction Atypical Hemolytic Uremic Syndrome (aHUS) is a rare, life-threatening disease that remains largely unfamiliar to the general public and even…

Continue ReadingaHUS awareness day and aHUS alliance Global Action
Read more about the article aHUS Newsletter: Have you Seen our July 2024 Edition?

aHUS Newsletter: Have you Seen our July 2024 Edition?

  • Post author:Linda Burke
  • Post published:August 2, 2024
  • Post category:Featured
  • Post comments:0 Comments

Where can you get aHUS news that’s independent, objective, and focused on what’s important to the atypical HUS community?  Here! We’re…

Continue ReadingaHUS Newsletter: Have you Seen our July 2024 Edition?
Read more about the article 2024 aHUS Awareness Day: Theme for the aHUS 24 Sept Campaign

2024 aHUS Awareness Day: Theme for the aHUS 24 Sept Campaign

  • Post author:Linda Burke
  • Post published:July 29, 2024
  • Post category:Featured
  • Post comments:0 Comments

The theme for aHUS Awareness Day 2024 is 'Mental Health'

Continue Reading2024 aHUS Awareness Day: Theme for the aHUS 24 Sept Campaign
Read more about the article AN aHUS PATIENT’S TREATMENT DISCONTINUATION MODEL

AN aHUS PATIENT’S TREATMENT DISCONTINUATION MODEL

  • Post author:Len Woodward
  • Post published:July 16, 2024
  • Post category:Featured
  • Post comments:0 Comments

Without any further comment here is the model mentioned in the previous article ( which if you have not already seen…

Continue ReadingAN aHUS PATIENT’S TREATMENT DISCONTINUATION MODEL
Read more about the article TO STOP OR NOT TO STOP – THAT IS THE QUESTION?

TO STOP OR NOT TO STOP – THAT IS THE QUESTION?

  • Post author:Len Woodward
  • Post published:July 16, 2024
  • Post category:Featured
  • Post comments:0 Comments

You have had aHUS. The type of aHUS caused by uncontrolled complement, not the other type. You got access to a…

Continue ReadingTO STOP OR NOT TO STOP – THAT IS THE QUESTION?
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