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Read more about the article Research into aHUS – an interview with a researcher

Research into aHUS – an interview with a researcher

  • Post author:Len Woodward
  • Post published:March 18, 2024
  • Post category:Featured
  • Post comments:0 Comments

Last year Global Action brought attention to a research article ( Closing the CaHUS knowledge gap ) which stood out as…

Continue ReadingResearch into aHUS – an interview with a researcher
Read more about the article Variants of uncertain significance (VUS) for aHUS

Variants of uncertain significance (VUS) for aHUS

  • Post author:Len Woodward
  • Post published:March 11, 2024
  • Post category:Featured
  • Post comments:0 Comments

If or when aHUS patients or their families are tested for complement genetic variants which could be the cause of their…

Continue ReadingVariants of uncertain significance (VUS) for aHUS
Read more about the article What’s New in aHUS Research: Feb 2024 Edition

What’s New in aHUS Research: Feb 2024 Edition

  • Post author:Linda Burke
  • Post published:February 18, 2024
  • Post category:Featured
  • Post comments:0 Comments

Atypical HUS - research updates for Feb 2024

Continue ReadingWhat’s New in aHUS Research: Feb 2024 Edition
Read more about the article Medication Guide Eculizumab

Medication Guide Eculizumab

  • Post author:Len Woodward
  • Post published:February 16, 2024
  • Post category:Featured
  • Post comments:0 Comments

Have you ever seen or read the medication guidance for using Eculizumab, or even Ravulizumab? There is one in every vial…

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Read more about the article Review of the research that matters to aHUS patients (Part 2)

Review of the research that matters to aHUS patients (Part 2)

  • Post author:Len Woodward
  • Post published:February 12, 2024
  • Post category:Featured
  • Post comments:0 Comments

When this review of the aHUS patients research agenda began, the question was asked "is a patient research agenda worth while?".…

Continue ReadingReview of the research that matters to aHUS patients (Part 2)
Read more about the article Review of the aHUS patient research agenda (Part 1)

Review of the aHUS patient research agenda (Part 1)

  • Post author:Len Woodward
  • Post published:February 7, 2024
  • Post category:Featured
  • Post comments:0 Comments

During December and January last, there has been a review of each of the 15 topics in the patients research agenda.…

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Read more about the article Family Planning- aHUS Agenda Topic 14

Family Planning- aHUS Agenda Topic 14

  • Post author:Len Woodward
  • Post published:January 29, 2024
  • Post category:Featured
  • Post comments:0 Comments

Pregnancy is a common trigger of aHUS, this can impact on someone who is predisposed or related to someone predisposed to…

Continue ReadingFamily Planning- aHUS Agenda Topic 14
Read more about the article Active life -aHUS Agenda Topic 13

Active life -aHUS Agenda Topic 13

  • Post author:Len Woodward
  • Post published:January 25, 2024
  • Post category:Featured
  • Post comments:0 Comments

An illness like aHUS can have an impact on a normal active life during the acute stage of the illness and…

Continue ReadingActive life -aHUS Agenda Topic 13
Read more about the article Mental health – aHUS Agenda Topic 12

Mental health – aHUS Agenda Topic 12

  • Post author:Len Woodward
  • Post published:January 22, 2024
  • Post category:Featured
  • Post comments:0 Comments

Mental health is an extensive issue of modern times focusing on depression and anxieties. The inverse of depression is self-esteem how…

Continue ReadingMental health – aHUS Agenda Topic 12
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