An aHUS tale from Slovakia
Article No. 304 12 December 2019 The alliance received a copy of an aHUS story from Slovakia. There are are unlikely…
aHUS is its end really nigh? (3)
Article No. 303 11 December 2019 It has taken nearly a century for aHUS nomenclature to reach the level acceptance, application…
Rare Disease Day: Atypical HUS in 2020
Article No. 302 7 December 2019 Rare Disease Day Looking Ahead: What Atypical HUS Community Sees for 2020 …
aHUS Expert Centre- what makes it so
Article No. 301 5 December 2019 Within the six pillars of support for those with rare diseases is a…
aHUS is its end really nigh? (2)
Article No 300 4 December 2019 In Part 1 the 95 year journey for aHUS to become in common use…
aHUS is its end really nigh? (Part 1)
Article No. 299 1 December 2019 Currently some challenge is taking place on the terms used to describe diseases in which…
aHUS Patient Centricity
Article No. 298 18 November 2019 A change is coming in the relationship between patients/ patient organisations and Pharma. This change…
Where and what next?
Article No. 297 15 November 2019 There is a saying in “management theory” that in the development of a…
Difference In differences
Article No. 295 9 November 2019 Genetics are important when it comes to aHUS. Yet genetics does not feature in the…
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