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Fatal non attraction for aHUS
Everyone has heard of magnetism. It is a physical force that attracts two objects together. It surrounds us, The earth is…
A little aHUS Awareness means a lot
As the world slips into September 25th, another aHUS Awareness Day passes. From the aHUS alliance‘s view it was the best…
Historical branches-aHUS in the Family
aHUS is known as a family illness. It was seen as something different from HUS when different family members experienced it…
Transplants, aHUS and eculizumab
The alliance has frequently featured articles about kidney transplants for those with aHUS. It was its top topic identified as a…
The role of Positive Health in the Dutch approach to aHUS
A new definition of Health: "Health as the ability to adapt and self-manage, in light of the physical, emotional and social…
Dialysis Diaries: Long Term Complications
The kidneys are wonder-organs. They do so many different things. They impact so many life-processes. It is impossible for individuals…
Letter to Alexion No. 2
14 July 2019 Dear Alexion On 1 January 2018 the aHUS alliance wrote an open letter to you ( click…
Dialysis Diaries: Heart Problems
Atypical HUS patients who have progressed to kidney failure and do not have access to a complement inhibitor like Eculizumab have…
aHUS Trials Watch 8
Cemdisiran has been a possible candidate drug for aHUS for some time. Alnylam the pharmaceutical company responsible for its development, withdrew…
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