It’s been a busy 4th quarter to round out 2024 for our aHUS Alliance Global Action team, and we’d like to share a few highlights from recent publications which have…
What does the internet have to say about news of change of name for aHUS? Global Action asked it, has the name aHUS been changed. This is the answer it…
On the 10th anniversary of international aHUS awareness day it is timely to raise awareness that the old term aHUS is on its last legs and is to be replaced.…
Every year since the first aHUS Awareness Day on 24 Sept 2015 we’ve attempted to shine a spotlight on atypical HUS research to help add more visibility to (and for)…
2024 – SEPT – 2025 Atypical HUS: Fact Sheets & Research Atypical Hemolytic Uremic Syndrome – a Rare Disease Information and medical knowledge can change rapidly, which can be…
The diseases PNH and aHUS, although different, share features in common. Both are very rare, both are the result of uncontrolled complement and both can benefit from complement inhibitor treatment.…
Nearly five years ago Global Action asked the question “ Is aHUS’s end nigh ?” In a trilogy of articles. ( click HERE for the first of the 3) Not…
The Life and works of Prof. Conrad von Gasser continues the series of Before aHUS Endeavours Fade. Contents Introduction Early years, education, and training Clinical Practice Hemolytic Uremic Syndromes…