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Change of name for aHUS news

What does the internet have to say about news of change of name for aHUS? Global Action asked it, has the name aHUS been changed. This is the answer it…

Out with old in with the new- not quite just yet

On the 10th anniversary of international aHUS awareness day it is timely to raise awareness that the old term aHUS is on its last legs and is to be replaced.…

What’s New in aHUS Research: SEPT 2024 Edition

Every year since the first aHUS Awareness Day on 24 Sept 2015 we’ve attempted to shine a spotlight on atypical HUS research to help add more visibility to (and for)…

Atypical HUS Facts: 2024 – Sept – 2025

2024 – SEPT – 2025 Atypical HUS: Fact Sheets & Research Atypical Hemolytic Uremic Syndrome – a Rare Disease Information and medical knowledge can change rapidly, which can be…

Atypical HUS and PNH: better together?

The diseases PNH and aHUS, although different, share features in common. Both are very rare, both are the result of uncontrolled complement and both can benefit from complement inhibitor treatment.…

Is aHUS’ end nigh? It is now!

Nearly five years ago Global Action asked the question “ Is aHUS’s end nigh ?” In a trilogy of articles. ( click HERE for the first of the 3) Not…

Life and works of Prof. Conrad von Gasser

The Life and works of Prof. Conrad von Gasser continues the series of Before aHUS Endeavours Fade. Contents Introduction Early years, education, and training Clinical Practice Hemolytic Uremic Syndromes…

The KDIGO “aHUS” Guidelines have arrived

The long anticipated KDIGO Guidelines from the Controversies Conference held in Florence in September 2022 are now published. The report can be seen in full in Kidney International at this…