Images for world aHUS Awareness Day, in multiple languages. aHUS Awareness Day was created in 2015 by the aHUS Alliance and recognized annually on 24 September to rare awareness about this very rare disease.
Welcome to the aHUS Alliance's Information Centre! Containing a stock of information resources about atypical Haemolytic Uraemic Syndrome gathered from around the world, this ‘virtual library’ is designed to accommodate…
What’s new in aHUS research? Quite a bit, if you consider that over four dozen publications have just been added to our aHUS-specific ‘Virtual Library’. There’s a reason we’re so…
aHUS patients are well aware of Anti-Complement Factor H Auto Antibodies can cause aHUS. I have heard them called Anti factor H antibodies but you get used to same things…
Rare Disease Day 2026: Many Voices, One Global Movement Since 2015, the aHUS Alliance Global Action team has been right there alongside patients and caregivers—creating resources, sharing knowledge, and putting…
The video for aHUS awareness day 2024 was about mental health and having aHUS. Global Action has looked again at it to see what important insights it might reveal. Participant…
Mental Health: Types of Therapy | Ways to Nurture Mental Wellness | Mental Health Toolkit & Resources It’s a casual question people ask all the time, “How’s it going?”…
As children with kidney disease grow to become adolescents, their medical care often changes from a pediatric to adult nephrology care setting – what common issues for teen patients surround this transition? A look at social, emotional, and medical aspects.