aHUS Awareness Day – aHUS Alliance Images Album
Dedicated to sharing information and insights into the extremely rare disease Atypical Hemolytic Uremic Syndrome, the aHUS Alliance invites people and organizations around the world to participate in raising aHUS awareness. It is estimated that aHUS affects 1 to 2 people per million.
Atypical Hemolytic Uremic Syndrome is a life-threatening disease characterized by the systemic formation of blood clots (TMAs) throughout the body potentially causing damage to the kidneys and other organs, with complications that may include serious or fatal events including stroke, cardiac issues, and kidney failure. It affects both adults and children and is often associated with an uncontrolled activation of the complement system, part of the body’s protective immune system.
The world’s first aHUS Awareness Day was held in 2015 on 24 September. During that same week 60 years ago the term Haemolytic Uraemic Syndrome first appeared in medical literature. HUS was given its name by Conrad von Gasser, when he and his research team described in an article for a Swiss clinical publication the illness they had been studying which caused blood clotting, anemia and kidney failure. The aHUS Alliance invites all stakeholders in aHUS community to join together and aid visibility to highlight information, insights, and issues specific to aHUS.
The aHUS Alliance encourages every nation, all individuals affected by aHUS, and corporate or medical teams to create aHUS Awareness Day projects, events, resources, or outreach campaigns leading up to September 24. Whether the choice is to focus on global aHUS issues, key national concerns, insights into patient life, research efforts, supportive messages, or innovative programs, stakeholders in the aHUS arena will join together to provide an authentic view of issues and healthcare concerns facing aHUS patients today.
Contact Us to Learn more about this year’s plans for international aHUS Awareness Day. E: info@aHUSallianceAction.org
Follow the 24 September aHUS Awareness Day campaign
On Twitter: @aHUS24Sept with Main Hashtag #aHUS24Sept (and #SHUa24Sept)
Follow the global aHUS advocacy with the aHUS Alliance: @aHUSallianceAct
and on our Facebook page: @aHUSalliance
As the official symbol for aHUS Awareness Day efforts around the world, the Red Balloon acts as a striking reminder that even the heaviest burdens cannot diminish the optimism of those living with atypical HUS. Its upward flight perfectly mirrors the capacity of the aHUS community to rise above challenges and head toward brighter, unlimited horizons.
Info & Advocacy: an IMAGE GALLERY
Looking for FACTS about Atypical HUS? Check out this gallery of our aHUS informational images, suitable for presentations or year-round use
aHUS Information, Insights, and Resources
about the rare disease atypical HUS
are available in the link below to our aHUS Alliance Press Kit
and in our INFO CENTRE
Resources for aHUS Day & Rare Disease Day
