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Read more about the article aHUS Community Advisory Board News

aHUS Community Advisory Board News

  • Post author:Len Woodward
  • Post published:February 28, 2023
  • Post category:News
  • Post comments:0 Comments

Two updates on the Global aHUS Community Advisory Board. There is some information about the inaugural set of CAB / PHARMA…

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Read more about the article aHUS Global Action – Meet Trustee K Grey

aHUS Global Action – Meet Trustee K Grey

  • Post author:Linda Burke
  • Post published:January 28, 2023
  • Post category:Featured
  • Post comments:1 Comment

As advocates for the rare disease atypical haemolytic uraemic syndrome (atypical HUS), there’s only one group of patients and caregivers whose…

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Read more about the article aHUS in New Zealand

aHUS in New Zealand

  • Post author:Linda Burke
  • Post published:August 24, 2022
  • Post category:Featured
  • Post comments:0 Comments

We're so pleased to highlight atypical HUS in New Zealand, with this article written by aHUS family caregiver Anna Benson. No…

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Read more about the article aHUS Day 2022: Awareness Through Togetherness

aHUS Day 2022: Awareness Through Togetherness

  • Post author:Linda Burke
  • Post published:July 11, 2022
  • Post category:News
  • Post comments:0 Comments

The 8th international aHUS Awareness Day will occur on 24 September 2022, with this year’s theme as ‘Awareness through Togetherness’. We’re…

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Read more about the article A Community Advisory Board for aHUS

A Community Advisory Board for aHUS

  • Post author:Len Woodward
  • Post published:June 12, 2022
  • Post category:News
  • Post comments:0 Comments

Today it can be announced that a Global aHUS Community Advisory Board (CAB) has been formed. What is a Community Advisory…

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Read more about the article Atypical HUS PROs: Patient Reported Outcomes

Atypical HUS PROs: Patient Reported Outcomes

  • Post author:Linda Burke
  • Post published:March 18, 2022
  • Post category:Featured
  • Post comments:0 Comments

What are patient reported outcomes (PROS)? The aHUS Alliance Global Action team look at PROs and their importance in the aHUS space.

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Read more about the article YOU’VE GOT aHUS!

YOU’VE GOT aHUS!

  • Post author:Len Woodward
  • Post published:February 28, 2022
  • Post category:News
  • Post comments:0 Comments

The third article in the series about the aHUS Diagnosis Process is published today. Rare Disease Day 2022 The article covers…

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Read more about the article aHUS Diagnosis Process-First Report

aHUS Diagnosis Process-First Report

  • Post author:Len Woodward
  • Post published:September 24, 2021
  • Post category:Uncategorized
  • Post comments:0 Comments

The first report on what 227 aHUS patients from around the world told us about their aHUS diagnosis experience and their…

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Read more about the article Atypical HUS:  What are you Waiting for?

Atypical HUS:  What are you Waiting for?

  • Post author:ahusalliance
  • Post published:March 26, 2020
  • Post category:Uncategorized
  • Post comments:0 Comments

Learning that you or a loved one have been diagnosed with a rare disease like atypical HUS is devastating. Imagine the…

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