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advocacy

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Read more about the article Rare Disease Caregivers

Rare Disease Caregivers

  • Post author:ahusalliance
  • Post published:November 8, 2016
  • Post category:Featured
  • Post comments:0 Comments

  Some countries use the term ‘carer’, while other nations prefer the word ‘caregiver’ to describe those individuals who fill the…

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Read more about the article Patient Engagement:   A Reality or Merely Buzzwords?

Patient Engagement:   A Reality or Merely Buzzwords?

  • Post author:ahusalliance
  • Post published:September 22, 2016
  • Post category:Featured
  • Post comments:0 Comments

    Patients both desire and need to be involved at every level of their healthcare.  Within the last decade there’s…

Continue ReadingPatient Engagement:   A Reality or Merely Buzzwords?
Read more about the article aHUS Awareness Day- Images from the aHUS Alliance

aHUS Awareness Day- Images from the aHUS Alliance

  • Post author:ahusalliance
  • Post published:August 13, 2016
  • Post category:Featured
  • Post comments:0 Comments

Images for world aHUS Awareness Day, in multiple languages. aHUS Awareness Day was created in 2015 by the aHUS Alliance and recognized annually on 24 September to rare awareness about this very rare disease.

Continue ReadingaHUS Awareness Day- Images from the aHUS Alliance
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