Rare Disease Caregivers
Some countries use the term ‘carer’, while other nations prefer the word ‘caregiver’ to describe those individuals who fill the…
Patient Engagement: A Reality or Merely Buzzwords?
Patients both desire and need to be involved at every level of their healthcare. Within the last decade there’s…
aHUS Awareness Day- Images from the aHUS Alliance
Images for world aHUS Awareness Day, in multiple languages. aHUS Awareness Day was created in 2015 by the aHUS Alliance and recognized annually on 24 September to rare awareness about this very rare disease.