Article No. 405 20 December 2020 In the past month there has been a spate of articles on the topic of withdrawal of eculizumab treatment from aHUS patients. Much has…
Article No. 382 29 September 2020 In just over three weeks it will be Kidney Week 2020. Kidney Week is the American Society of Nephrologists' (ASN) annual conference. Not surprisingly…
Article No. 354 4 July 2020 Earlier this year aHUS Global Action published a major four part report (see HERE) on the importance of patient reported outcome data in…
Article No. 341 27 April 2020 When news about the rare disease ‘atypical hemolytic uremic syndrome’ (atypical HUS) appears in medical journals or social media, the aHUS Alliance seeks to…
Article No. 338 10 April 2020 Mental Health admist COVID-19 In challenging times, circumstances may find you feeling isolated or anxious, but likely many people additionally experience…
Article No. 333 18 March 2020 The reaction to aHUS Global Action’s two blogs about aHUS and COVID-19 has been truly remarkable. It demonstrated , superbly ,the interest by the…
Atypical HUS - RESOURCES About aHUS - General Info Info Centre Know aHUS: Know US aHUS PRESS KIT Image Gallery: Atypical HUS info & advocacy Atypical HUS 1.0 - to…
Atypical HUS: 2020 Rare Disease Day project by the aHUS Alliance. What do aHUS patients & family caregivers ‘see’ as needs for improvement or envision as future advancements for aHUS through 2020?