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Read more about the article aHUS website refreshed

aHUS website refreshed

  • Post author:ahusalliance
  • Post published:September 4, 2021
  • Post category:Featured
  • Post comments:0 Comments

Article No. 456 From today the aHUS alliance Global Action website has a new look. Just over five years since it…

Continue ReadingaHUS website refreshed
Read more about the article Challenges for the new aHUS year- “Bring it on”

Challenges for the new aHUS year- “Bring it on”

  • Post author:ahusalliance
  • Post published:December 27, 2018
  • Post category:Featured
  • Post comments:0 Comments

Another year has ended for those affected by aHUS. For some sadly it would have proven to have been their last.…

Continue ReadingChallenges for the new aHUS year- “Bring it on”
Read more about the article Atypical HUS – Rare Disease Day 2018

Atypical HUS – Rare Disease Day 2018

  • Post author:ahusalliance
  • Post published:December 1, 2017
  • Post category:Featured
  • Post comments:0 Comments

Rare Disease Day will be marked around the world on 28 February 2018 and the aHUS Alliance is pleased to announce…

Continue ReadingAtypical HUS – Rare Disease Day 2018
Read more about the article aHUS “How To” – Find Atypical HUS Research

aHUS “How To” – Find Atypical HUS Research

  • Post author:ahusalliance
  • Post published:October 14, 2017
  • Post category:Featured
  • Post comments:0 Comments

  It can be a struggle to find information about medical conditions if you’ve been diagnosed with a rare disease, and…

Continue ReadingaHUS “How To” – Find Atypical HUS Research
Read more about the article Atypical HUS Facts – 2017 aHUS Alliance Fact Sheets

Atypical HUS Facts – 2017 aHUS Alliance Fact Sheets

  • Post author:ahusalliance
  • Post published:October 9, 2017
  • Post category:Featured
  • Post comments:0 Comments

  Looking for the latest 2017 facts and key research about the rare disease atypical hemolytic uremic syndrome (aHUS)?  You’ve found…

Continue ReadingAtypical HUS Facts – 2017 aHUS Alliance Fact Sheets
Read more about the article AGENDA for TMA & aHUS Symposium in Boston 24 Aug 2017

AGENDA for TMA & aHUS Symposium in Boston 24 Aug 2017

  • Post author:ahusalliance
  • Post published:July 9, 2017
  • Post category:Featured
  • Post comments:0 Comments

    Post-Event Update:   Presentations were videotaped, and appear on YouTube on the aHUS Alliance Atypical HUS Clinical Channel .…

Continue ReadingAGENDA for TMA & aHUS Symposium in Boston 24 Aug 2017
Read more about the article Genetic tests – to know or not?

Genetic tests – to know or not?

  • Post author:ahusalliance
  • Post published:April 20, 2017
  • Post category:Featured
  • Post comments:0 Comments

Genetics is very important to aHUS patients. aHUS is a very rare genetic diseases. aHUS patients get to know and understand…

Continue ReadingGenetic tests – to know or not?
Read more about the article aHUS Alliance – Press Kit

aHUS Alliance – Press Kit

  • Post author:ahusalliance
  • Post published:February 14, 2017
  • Post category:Featured
  • Post comments:0 Comments

  Patients sharing their rare disease journey help bring new levels of understanding to researchers, industry, and the general public.  Whether…

Continue ReadingaHUS Alliance – Press Kit
Read more about the article aHUS alliance video for aHUS Awareness Day 2016

aHUS alliance video for aHUS Awareness Day 2016

  • Post author:ahusalliance
  • Post published:September 24, 2016
  • Post category:Featured
  • Post comments:0 Comments

Use the following link to see the work of aHUS patients, parents and carers from 17 countries around the world on…

Continue ReadingaHUS alliance video for aHUS Awareness Day 2016
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