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Read more about the article Later onset aHUS

Later onset aHUS

  • Post author:Len Woodward
  • Post published:July 9, 2023
  • Post category:Featured
  • Post comments:0 Comments

We all want aHUS patients to survive to old age, but what about those whose aHUS onset is later in life.…

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Read more about the article Atypical HUS in Brazil

Atypical HUS in Brazil

  • Post author:Linda Burke
  • Post published:July 8, 2023
  • Post category:Featured
  • Post comments:0 Comments

Atypical HUS in Brazil - an interview with Pamela Notario of SHUa Brasil. (aHUS around the World: an aHUS Alliance Global Action series)

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Read more about the article Informed about aHUS Patient Involvement

Informed about aHUS Patient Involvement

  • Post author:Len Woodward
  • Post published:June 23, 2023
  • Post category:Featured
  • Post comments:0 Comments

Involving patients in clinical studies design and conduct is ethical (Article 575). Involving patients as subjects of that study is ethically…

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Read more about the article Before aHUS endeavours fade

Before aHUS endeavours fade

  • Post author:Len Woodward
  • Post published:June 12, 2023
  • Post category:News
  • Post comments:0 Comments

There have been moments and events in the past where someone whose endeavours make a significant difference for those who have…

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Read more about the article Why aHUS for them not me?

Why aHUS for them not me?

  • Post author:Len Woodward
  • Post published:June 6, 2023
  • Post category:Uncategorized
  • Post comments:0 Comments

Hey GA tell me why aHUS for them and not me? Oh hi again. Who is them?Some of my family they…

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Read more about the article Lessons about aHUS  Patient Advocacy

Lessons about aHUS Patient Advocacy

  • Post author:Len Woodward
  • Post published:May 18, 2023
  • Post category:Uncategorized
  • Post comments:0 Comments

In the past this website featured a series of blogs which covered the story of a patient advocacy organisation in the…

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Read more about the article The aHUS Global Advocate Newsletter: 7th Edition

The aHUS Global Advocate Newsletter: 7th Edition

  • Post author:Linda Burke
  • Post published:May 14, 2023
  • Post category:News
  • Post comments:0 Comments

Written by an international team of aHUS patients and caregivers, the newsletter is an objective look at information and topics important…

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Read more about the article Global aHUS at the Baltimore Conference

Global aHUS at the Baltimore Conference

  • Post author:Len Woodward
  • Post published:April 28, 2023
  • Post category:News
  • Post comments:0 Comments

Global Action will be attending the Foundation’s Baltimore aHUS patients conference from the 28th to the 30th April. Here you will…

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Read more about the article The ethics of aHUS patient involvement.

The ethics of aHUS patient involvement.

  • Post author:Len Woodward
  • Post published:April 16, 2023
  • Post category:Featured/News
  • Post comments:0 Comments

Over the past 10 years the movement of involvement of patients in the development of medicines, their regulation and use has…

Continue ReadingThe ethics of aHUS patient involvement.
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