Later onset aHUS
We all want aHUS patients to survive to old age, but what about those whose aHUS onset is later in life.…
Atypical HUS in Brazil
Atypical HUS in Brazil - an interview with Pamela Notario of SHUa Brasil. (aHUS around the World: an aHUS Alliance Global Action series)
Informed about aHUS Patient Involvement
Involving patients in clinical studies design and conduct is ethical (Article 575). Involving patients as subjects of that study is ethically…
Before aHUS endeavours fade
There have been moments and events in the past where someone whose endeavours make a significant difference for those who have…
Why aHUS for them not me?
Hey GA tell me why aHUS for them and not me? Oh hi again. Who is them?Some of my family they…
Lessons about aHUS Patient Advocacy
In the past this website featured a series of blogs which covered the story of a patient advocacy organisation in the…
The aHUS Global Advocate Newsletter: 7th Edition
Written by an international team of aHUS patients and caregivers, the newsletter is an objective look at information and topics important…
Global aHUS at the Baltimore Conference
Global Action will be attending the Foundation’s Baltimore aHUS patients conference from the 28th to the 30th April. Here you will…
The ethics of aHUS patient involvement.
Over the past 10 years the movement of involvement of patients in the development of medicines, their regulation and use has…
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