Before aHUS endeavours fade
There have been moments and events in the past where someone whose endeavours make a significant difference for those who have…
Why aHUS for them not me?
Hey GA tell me why aHUS for them and not me? Oh hi again. Who is them?Some of my family they…
Lessons about aHUS Patient Advocacy
In the past this website featured a series of blogs which covered the story of a patient advocacy organisation in the…
The aHUS Global Advocate Newsletter: 7th Edition
Written by an international team of aHUS patients and caregivers, the newsletter is an objective look at information and topics important…
Global aHUS at the Baltimore Conference
Global Action will be attending the Foundation’s Baltimore aHUS patients conference from the 28th to the 30th April. Here you will…
The ethics of aHUS patient involvement.
Over the past 10 years the movement of involvement of patients in the development of medicines, their regulation and use has…
Iceland and aHUS
Nearly 400,000 people live in Iceland. At normal prevalence levels there should be two aHUS patients. There are at least three…
Nephmadness and aHUS
In March each year the nephrology community, supported by the American Journal of Kidney Disease, engages in an educational initiative called…
aHUS meningococcal infection – vigilance essential
All aHUS patients know that when on complement inhibitor treatment they are at risk of meningococcal infection. Do they? Of course,…
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