aHUS Patient Registries Iran & ERKNet
There have been several articles about aHUS Patient Registries on this website over the years. Patient Registries are an important part…
aHUS Diagnosis Process-First Report
The first report on what 227 aHUS patients from around the world told us about their aHUS diagnosis experience and their…
2021 FAQs – FACTS about Atypical HUS
aHUS Awareness Day 2021 - Answers to FAQs Finding information about any rare disease is challenging, and perhaps more so for…
Withdrawal – need for a consensus
Article No. 457 Yet another article about the outcome of withdrawal of eculizumab treatment has appeared. It is not about a…
aHUS PREGNANCY COUNSELLING
Article No. 454 aHUS triggered by pregnancy is relatively common and accounts for 16% of female ( 18 to 45 years)…
aHUS nomenclature project group
Article No. 451 4 August 2021 Following on swiftly from Article No. 450 about the current babble of names and need…
What became of the aHUS 130?
Article No. 446 14 July 2021 Eculizumab effectiveness and safety in the treatment of aHUS was established in five clinical trials…
aHUS Trials Watch 12a (crovalimab)
Article No. 445 13 July 2021 Hoffmann Roche has announced its pediatric trial of crovalimab for aHUS. It is featured on…
COVID 19 triggers aHUS
Article No. 444 12 July 2021 Not unexpectedly, as aHUS Global Action had postulated it in March last year, a COVID…
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