Affordable Care makes sense everywhere
Access to heath care and treatment is a global concern for all those with chronic, life threatening heath conditions; probably even…
Research & Education: Keys to aHUS Answers
Especially with very rare diseases such as atypical HUS, medical research and education efforts are keys to unlocking information that’s critical…
Is it aHUS? Perhaps it’s TTP, STEC-HUS, or Another TMA
Feeling sick is difficult enough without going to a doctor’s appointment and learning that the diagnosis might possibly be the…
Parents Want to Know about aHUS Childrens’ Issues
Exploring your Questions, Rare Disease Day 2017 Children living with the rare disease atypical HUS are first and foremost children. Despite…
Vision Issues & aHUS
It’s difficult for rare disease patients to find information about their condition and even more so for patients with medical…
Images for Rare Disease Day
The aHUS Alliance Global Action team has a gallery with a sampling of atypical HUS informational images for people and groups to share facts in their advocacy effort.
Info & Advocacy – an Image Gallery
Below are just some aHUS Alliance images created for Rare Disease Day, so please visit our social media on platforms such as Twitter/X @aHUSallianceAct for a comprehensive array of current graphics.
aHUS Diagnosis & Treatment – KDIGO Controversy Conference
The KDIGO Controversies Conference on Complement-Mediated Kidney Disease was held November 19-21 2015 in Barcelona Spain. KDIGO’s mission is to…
Rare Disease Caregivers
Some countries use the term ‘carer’, while other nations prefer the word ‘caregiver’ to describe those individuals who fill the…
aHUS alliance video for aHUS Awareness Day 2016
Use the following link to see the work of aHUS patients, parents and carers from 17 countries around the world on…