Social media and aHUS- Before aHUS endeavours fade
aHUS in the social media is now much more commonplace. In this latest article in the series “Before aHUS Endeavours Fade”…
Atypical HUS and PNH: better together?
The diseases PNH and aHUS, although different, share features in common. Both are very rare, both are the result of uncontrolled…
aHUS awareness day and aHUS alliance Global Action
Introduction Atypical Hemolytic Uremic Syndrome (aHUS) is a rare, life-threatening disease that remains largely unfamiliar to the general public and even…
A Complement Weekend
An International Patient's Conference on aHUS and C3 Glomerulopathy / MPGN is being organised on the 14th and 15th of September…
aHUS Global Poll 2024- 7 days left.
There is now 7 days to go before the Global aHUS Poll is closed to further responses. This year Global aHUS…
AN aHUS PATIENT’S TREATMENT DISCONTINUATION MODEL
Without any further comment here is the model mentioned in the previous article ( which if you have not already seen…
TO STOP OR NOT TO STOP – THAT IS THE QUESTION?
You have had aHUS. The type of aHUS caused by uncontrolled complement, not the other type. You got access to a…
Life and works of Prof. Conrad von Gasser
The Life and works of Prof. Conrad von Gasser continues the series of Before aHUS Endeavours Fade. Contents Introduction Early…
A website with an all angles approach to aHUS
Some time back aHUS Global Action gave a presentation to an aHUS patient conference and included the following slide about its…
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