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Read more about the article Review of the research that matters to aHUS patients (Part 2)

Review of the research that matters to aHUS patients (Part 2)

  • Post author:Len Woodward
  • Post published:February 12, 2024
  • Post category:Featured
  • Post comments:0 Comments

When this review of the aHUS patients research agenda began, the question was asked "is a patient research agenda worth while?".…

Continue ReadingReview of the research that matters to aHUS patients (Part 2)
Read more about the article Review of the aHUS patient research agenda (Part 1)

Review of the aHUS patient research agenda (Part 1)

  • Post author:Len Woodward
  • Post published:February 7, 2024
  • Post category:Featured
  • Post comments:0 Comments

During December and January last, there has been a review of each of the 15 topics in the patients research agenda.…

Continue ReadingReview of the aHUS patient research agenda (Part 1)
Read more about the article Dr Leonard Bell – Before aHUS Endeavours Fade

Dr Leonard Bell – Before aHUS Endeavours Fade

  • Post author:Len Woodward
  • Post published:February 5, 2024
  • Post category:News
  • Post comments:0 Comments

Those new to the disease aHUS may not know the significant contribution that Dr Leonard Bell has made to their treatment…

Continue ReadingDr Leonard Bell – Before aHUS Endeavours Fade
Read more about the article Epidemiology – aHUS Agenda Topic 15-

Epidemiology – aHUS Agenda Topic 15-

  • Post author:Len Woodward
  • Post published:January 31, 2024
  • Post category:News
  • Post comments:0 Comments

aHUS epidemiology is the about how many aHUS patients there are. The numbers onsetting and surviving. It’s “Incidence” and “prevalence”. How…

Continue ReadingEpidemiology – aHUS Agenda Topic 15-
Read more about the article Family Planning- aHUS Agenda Topic 14

Family Planning- aHUS Agenda Topic 14

  • Post author:Len Woodward
  • Post published:January 29, 2024
  • Post category:Featured
  • Post comments:0 Comments

Pregnancy is a common trigger of aHUS, this can impact on someone who is predisposed or related to someone predisposed to…

Continue ReadingFamily Planning- aHUS Agenda Topic 14
Read more about the article Active life -aHUS Agenda Topic 13

Active life -aHUS Agenda Topic 13

  • Post author:Len Woodward
  • Post published:January 25, 2024
  • Post category:Featured
  • Post comments:0 Comments

An illness like aHUS can have an impact on a normal active life during the acute stage of the illness and…

Continue ReadingActive life -aHUS Agenda Topic 13
Read more about the article Mental health – aHUS Agenda Topic 12

Mental health – aHUS Agenda Topic 12

  • Post author:Len Woodward
  • Post published:January 22, 2024
  • Post category:Featured
  • Post comments:0 Comments

Mental health is an extensive issue of modern times focusing on depression and anxieties. The inverse of depression is self-esteem how…

Continue ReadingMental health – aHUS Agenda Topic 12
Read more about the article Adverse events – aHUS Agenda Topic 11

Adverse events – aHUS Agenda Topic 11

  • Post author:Len Woodward
  • Post published:January 17, 2024
  • Post category:Featured
  • Post comments:0 Comments

Although people’s experiences differ both treatment and long term effects of aHUS can be detected by patients. Patients have asked :…

Continue ReadingAdverse events – aHUS Agenda Topic 11
Read more about the article MENINGOCOCCAL INFECTION – JAAC’s STORY

MENINGOCOCCAL INFECTION – JAAC’s STORY

  • Post author:Len Woodward
  • Post published:January 15, 2024
  • Post category:Featured
  • Post comments:0 Comments

aHUS patient Jaac and his mother Ria are from the UK. Ria spoke to Global Action about her son’s meningococcal infection…

Continue ReadingMENINGOCOCCAL INFECTION – JAAC’s STORY
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