AHUS patients without kidney involvement- who are they
Diagnosing aHUS patients without kidney involvement has always seemed paradoxical. TMA can affect capillaries in all organs but the “u” in…
Is it time to have aHUS
Anyone who can get aHUS can get it any time. That makes sense the disease is just the product of a…
aHUS and the foetus
There are two involved in a pregnancy and birth the mother and the foetus /baby. The mother may or may not…
Later onset aHUS
We all want aHUS patients to survive to old age, but what about those whose aHUS onset is later in life.…
Informed about aHUS Patient Involvement
Involving patients in clinical studies design and conduct is ethical (Article 575). Involving patients as subjects of that study is ethically…
Before aHUS endeavours fade
There have been moments and events in the past where someone whose endeavours make a significant difference for those who have…
Why aHUS for them not me?
Hey GA tell me why aHUS for them and not me? Oh hi again. Who is them?Some of my family they…
The aHUS Global Advocate Newsletter: 7th Edition
Written by an international team of aHUS patients and caregivers, the newsletter is an objective look at information and topics important…
Global aHUS at the Baltimore Conference
Global Action will be attending the Foundation’s Baltimore aHUS patients conference from the 28th to the 30th April. Here you will…
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