Milan -The Final Stop but not the Full Stop
The alliance reached its final stop on its Whistle Stop tour of four aHUS Expert Centres in Europe. In…
Third Stop Bergamo Italy and another aHUS Expert Centre
Bergamo IT - Whistle-Stop Tour of 4 aHUS Centers in the EU: Visits to Three Nations in 6 days. The aHUS Alliance toured centers of aHUS expertise and research in July 2018. 3rd Stop: Mario Negri Institute, the Centro di Ricerche Cliniche per le Malattie Rare "Aldo e Cele Daccò"
South African Pediatric Nephrology: Global Panel Proposed for aHUS Drug Access
Dr Errol Gottlich and Professor Mignon McCulloch Resilience, fortitude and determination. These characteristics describe the South African doctor treating patients within a complex and changing…
aHUS and TMA Study Centers
aHUS and TMA Study Centers An International List Compiled by the aHUS Alliance Atypical HUS is difficult…
ESKD 2018 Global Health Summit in UAE
Mr Kamal D. Shah, founder of Atypical HUS India and co-founder of India’s largest network of dialysis clinics, was…
Dr Ralf Reski on Moss-Made Biopharmaceuticals: aHUS Alliance Interview
The aHUS Alliance recently conducted an interview with Dr Ralf Reski, a professor and researcher in the field of…
The Many Faces of Atypical HUS: Rare Disease Day 2018
What happens after the world annually marks Rare Disease Day on the last day of February? We carry on…
Creating Your Advocacy Footprint in the Rare Disease Arena
What does the term ‘rare disease advocacy’ mean to you? Patients and caregivers speaking up on social media or…
Patients Included: Reality or Unmet Goal? (#4: MYTHS of Rare Disease Advocacy)
The Last in the aHUS Alliance Four Part Series Patients Included: Reality or Unmet Goal? 4 MYTHS of Rare…