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atypical HUS

Home » atypical HUS » Page 7
Read more about the article Research & Education: Keys to aHUS Answers

Research & Education: Keys to aHUS Answers

  • Post author:ahusalliance
  • Post published:April 6, 2017
  • Post category:featured/Uncategorized
  • Post comments:0 Comments

Especially with very rare diseases such as atypical HUS, medical research and education efforts are keys to unlocking information that’s critical…

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Read more about the article Is it aHUS?    Perhaps it’s TTP, STEC-HUS, or Another TMA

Is it aHUS?   Perhaps it’s TTP, STEC-HUS, or Another TMA

  • Post author:ahusalliance
  • Post published:April 1, 2017
  • Post category:featured
  • Post comments:0 Comments

  Feeling sick is difficult enough without going to a doctor’s appointment and learning that the diagnosis might possibly be the…

Continue ReadingIs it aHUS?   Perhaps it’s TTP, STEC-HUS, or Another TMA
Read more about the article Parents Want to Know about aHUS Childrens’ Issues

Parents Want to Know about aHUS Childrens’ Issues

  • Post author:ahusalliance
  • Post published:March 21, 2017
  • Post category:featured
  • Post comments:0 Comments

Exploring your Questions, Rare Disease Day 2017 Children living with the rare disease atypical HUS are first and foremost children.  Despite…

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Read more about the article Images for Rare Disease Day

Images for Rare Disease Day

  • Post author:ahusalliance
  • Post published:February 5, 2017
  • Post category:featured
  • Post comments:0 Comments

Below are some aHUS Alliance images for Rare Disease Day, please visit our social media for a comprehensive array of current…

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Read more about the article aHUS Diagnosis & Treatment – KDIGO Controversy Conference

aHUS Diagnosis & Treatment – KDIGO Controversy Conference

  • Post author:ahusalliance
  • Post published:December 18, 2016
  • Post category:featured
  • Post comments:0 Comments

  The KDIGO Controversies Conference on Complement-Mediated Kidney Disease was held November 19-21 2015 in Barcelona Spain.   KDIGO’s mission is to…

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Read more about the article Rare Disease Caregivers

Rare Disease Caregivers

  • Post author:ahusalliance
  • Post published:November 8, 2016
  • Post category:featured
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  Some countries use the term ‘carer’, while other nations prefer the word ‘caregiver’ to describe those individuals who fill the…

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Read more about the article aHUS alliance video for aHUS Awareness Day 2016

aHUS alliance video for aHUS Awareness Day 2016

  • Post author:ahusalliance
  • Post published:September 24, 2016
  • Post category:featured
  • Post comments:0 Comments

Use the following link to see the work of aHUS patients, parents and carers from 17 countries around the world on…

Continue ReadingaHUS alliance video for aHUS Awareness Day 2016
Read more about the article Patient Engagement:   A Reality or Merely Buzzwords?

Patient Engagement:   A Reality or Merely Buzzwords?

  • Post author:ahusalliance
  • Post published:September 22, 2016
  • Post category:featured
  • Post comments:0 Comments

    Patients both desire and need to be involved at every level of their healthcare.  Within the last decade there’s…

Continue ReadingPatient Engagement:   A Reality or Merely Buzzwords?
Read more about the article aHUS Therapeutic Drug Pipeline – More ‘Ones to Watch’

aHUS Therapeutic Drug Pipeline – More ‘Ones to Watch’

  • Post author:ahusalliance
  • Post published:August 29, 2016
  • Post category:featured
  • Post comments:0 Comments

NEW Information & Updates Available Here's the Latest:  Atypical HUS Drug Pipeline – 2017 Update from the aHUS Alliance    …

Continue ReadingaHUS Therapeutic Drug Pipeline – More ‘Ones to Watch’
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