How Do You Define Wellness if You’re Living with a Rare Disease or Chronic Illness?
What does the term ‘wellness’ mean if you’re a patient with a very rare disease or chronic illness? At…
Thrombotic Microangiopathy Symposium in Boston – 24 Aug 2017
Thrombotic Microangiopathy Symposium: Through the Lens of aHUS 24 August 2017 in Boston Post-Event Update: LIVE BLOG: At…
aHUS Perspectives – an Interview with Dr Gianluigi Ardissino
The aHUS Alliance presents an informal interview with Dr. Gianluigi Ardissino, a clinician and researcher affiliated with Centro SEU in Milan, Italy, with insight into the interface of HUS and aHUS.
aHUS alliance website one year on
The aHUS alliance website has reached its first anniversary. Although some of the first blogs have dates preceding 28 May 2016…
aHUS Patient Care – the Need for Multidisciplinary Collaboration
Patients make appointments to see their primary care physician when a health issue arises, but often more complex cases merit…
aHUS Awareness Day: 24 September 2017
The aHUS Alliance, an international group of atypical HUS patient organizations and global advocates, announces its 3rd annual worldwide aHUS…
Perspectives in aHUS – Creating Opportunities & Meeting Challenges – Kamal D. Shah of India
Atypical HUS - Perspectives: An ongoing series from the aHUS Alliance that features varied views, people, advocacy, organizations, or efforts that can provide deeper understanding and insights into this rare disease.
Sleep Disturbances and Chronic Kidney Disease
Many people with chronic kidney disease experience sleep disturbances, apparently affecting patients of all ages and many clinical subtypes. Here we present a curated list of information about sleep disorders and kidney disease, providing excerpts to provide an overview of how sleep disorders may have potential to impact atypical HUS patients of various ages and with varied health histories.
Research & Education: Keys to aHUS Answers
Especially with very rare diseases such as atypical HUS, medical research and education efforts are keys to unlocking information that’s critical…