Patients as Partners
Patients are at the heart of healthcare. Patients are the recipients of medical care, and the participants in research…
aHUS Perspectives – an Interview with Dr Gianluigi Ardissino
The aHUS Alliance presents an informal interview with Dr. Gianluigi Ardissino, a clinician and researcher affiliated with Centro SEU in Milan, Italy, with insight into the interface of HUS and aHUS.
Why is Complement “Complement” ?
It is nearly 102 years since the death of Paul Ehrlich."So what? " you might say. But it was Ehrlich who…
aHUS alliance website one year on
The aHUS alliance website has reached its first anniversary. Although some of the first blogs have dates preceding 28 May 2016…
aHUS Awareness Day: 24 September 2017
The aHUS Alliance, an international group of atypical HUS patient organizations and global advocates, announces its 3rd annual worldwide aHUS…
Perspectives in aHUS – Creating Opportunities & Meeting Challenges – Kamal D. Shah of India
Atypical HUS - Perspectives: An ongoing series from the aHUS Alliance that features varied views, people, advocacy, organizations, or efforts that can provide deeper understanding and insights into this rare disease.
Genetic tests – to know or not?
Genetics is very important to aHUS patients. aHUS is a very rare genetic diseases. aHUS patients get to know and understand…
Sleep Disturbances and Chronic Kidney Disease
Many people with chronic kidney disease experience sleep disturbances, apparently affecting patients of all ages and many clinical subtypes. Here we present a curated list of information about sleep disorders and kidney disease, providing excerpts to provide an overview of how sleep disorders may have potential to impact atypical HUS patients of various ages and with varied health histories.
Research & Education: Keys to aHUS Answers
Especially with very rare diseases such as atypical HUS, medical research and education efforts are keys to unlocking information that’s critical…