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Read more about the article Vision Issues & aHUS

Vision Issues & aHUS

  • Post author:ahusalliance
  • Post published:March 8, 2017
  • Post category:featured
  • Post comments:0 Comments

  It’s difficult for rare disease patients to find information about their condition and even more so for patients with medical…

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Read more about the article Images for Rare Disease Day

Images for Rare Disease Day

  • Post author:ahusalliance
  • Post published:February 5, 2017
  • Post category:featured
  • Post comments:0 Comments

Below are some aHUS Alliance images for Rare Disease Day, please visit our social media for a comprehensive array of current…

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Read more about the article aHUS Diagnosis & Treatment – KDIGO Controversy Conference

aHUS Diagnosis & Treatment – KDIGO Controversy Conference

  • Post author:ahusalliance
  • Post published:December 18, 2016
  • Post category:featured
  • Post comments:0 Comments

  The KDIGO Controversies Conference on Complement-Mediated Kidney Disease was held November 19-21 2015 in Barcelona Spain.   KDIGO’s mission is to…

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Read more about the article Rare Disease Caregivers

Rare Disease Caregivers

  • Post author:ahusalliance
  • Post published:November 8, 2016
  • Post category:featured
  • Post comments:0 Comments

  Some countries use the term ‘carer’, while other nations prefer the word ‘caregiver’ to describe those individuals who fill the…

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Read more about the article aHUS alliance video for aHUS Awareness Day 2016

aHUS alliance video for aHUS Awareness Day 2016

  • Post author:ahusalliance
  • Post published:September 24, 2016
  • Post category:featured
  • Post comments:0 Comments

Use the following link to see the work of aHUS patients, parents and carers from 17 countries around the world on…

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Read more about the article Patient Engagement:   A Reality or Merely Buzzwords?

Patient Engagement:   A Reality or Merely Buzzwords?

  • Post author:ahusalliance
  • Post published:September 22, 2016
  • Post category:featured
  • Post comments:0 Comments

    Patients both desire and need to be involved at every level of their healthcare.  Within the last decade there’s…

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Social Media and aHUS

  • Post author:ahusalliance
  • Post published:May 24, 2016
  • Post category:Uncategorized
  • Post comments:0 Comments

No one can describe the aHUS journey better than atypical HUS patients and their caregivers, and who better to globally frame…

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aHUS Voice in 2016

  • Post author:ahusalliance
  • Post published:May 19, 2016
  • Post category:featured
  • Post comments:0 Comments

2016 aHUS Global Poll - Results aHUS Patient Global Voice In a multi-national collaboration of aHUS patient organizations around the world,…

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