aHUS AWARENESS DAY
24 September – an annual day to highlight the issues,
challenges, and remarkable individuals within the aHUS community
The aHUS Alliance created the 1st aHUS Awareness Day in 2015 to raise visibility about the rare disease atypical hemolytic uremic syndrome (atypical HUS). From its start and since then, the aHUS Alliance Global Action team has led this annual 24 September campaign creating fact sheets, graphics, and resources to serve the needs of patients and caregivers as well as clinicians and the general public.
Our website offers original content created by an international volunteer team of aHUS patient advocates and family caregivers. Our articles express global patient voices and collaborative efforts with aHUS research teams and advocacy groups.
Brief History & FAQs
Why 24 September?
September 24, 2015 was selected as the inaugural date for the first aHUS Awareness Day because during this same week 60 years ago the term Haemolytic Uraemic Syndrome first appeared in medical literature. HUS was given its name by Conrad von Gasser, when he and his research team described in an article for a Swiss clinical publication the illness they had been studying which caused blood clotting, anemia and kidney failure. Read more HERE and HERE.
We invite you to explore our aHUS Press Kit (General Information, Assets & Resources)
What is atypical HUS?
Video & Info: aHUS National Service U.K.
Genetic Atypical Hemolytic-Uremic Syndrome – GeneReviews®
When was aHUS first noted in medicine?
Who was Conrad von Gasser? for a Deeper Dive: Life & Achievements of Conrad von Gasser
On Different names & spellings for aHUS Overview : A Need for updated Nomenclature
Our ‘Simple Language’ version: What is atypical HUS and how is it similar/different to the more common diagnosis of HUS?
aHUS Awareness Day – Campaigns & Images
Graphics – 24 Sept CAMPAIGN Images
Informational & Advocacy Images: Gallery (year round awareness)
aHUS Awareness Day on Twitter @aHUS24Sept
Our Main Hashtag: #aHUS24Sept (also: #aHUSday #aHUSaware #SHUa24Sept #aHUSawareness #aHUSawarenessDay)
Our aHUS community also celebrates a second awareness day, learn more about our efforts to mark world
Rare Disease Day – FMI click HERE
