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Read more about the article RDD23 VIDEO – RESULTS REPORT

RDD23 VIDEO – RESULTS REPORT

  • Post author:Len Woodward
  • Post published:March 18, 2023
  • Post category:Featured
  • Post comments:0 Comments

WWW.AHUSALLIANCEGLOBALACTION.ORG 18 March 2023 aHUS PATIENTS' VIEWS ON THE ATTRIBUTION OF ADVERSE EVENTS /SIDE EFFECTS EXPERIENCED DUE TO EITHER THEIR PRIMARY…

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Read more about the article Baltimore -aHUS First Since COVID

Baltimore -aHUS First Since COVID

  • Post author:Len Woodward
  • Post published:March 17, 2023
  • Post category:News
  • Post comments:0 Comments

Zoom has helped with keeping aHUS advocacy going during the restrictions resulting from the COVID pandemic. Starting a zoom meeting always…

Continue ReadingBaltimore -aHUS First Since COVID
Read more about the article Is incidence of aHUS  really “2 per million”?

Is incidence of aHUS really “2 per million”?

  • Post author:Len Woodward
  • Post published:March 10, 2023
  • Post category:Featured/News
  • Post comments:0 Comments

I know it should not matter so much but whenever I see incidence and prevalence figures for aHUS in articles etc,…

Continue ReadingIs incidence of aHUS really “2 per million”?
Read more about the article aHUS Community Advisory Board News

aHUS Community Advisory Board News

  • Post author:Len Woodward
  • Post published:February 28, 2023
  • Post category:News
  • Post comments:0 Comments

Two updates on the Global aHUS Community Advisory Board. There is some information about the inaugural set of CAB / PHARMA…

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Read more about the article aHUS trial watch 17- NM8074

aHUS trial watch 17- NM8074

  • Post author:Len Woodward
  • Post published:February 9, 2023
  • Post category:News
  • Post comments:0 Comments

Another trial of a complement inhibitor for aHUS treatment has been announced , it is for something currently called NM8074. Full…

Continue ReadingaHUS trial watch 17- NM8074
Read more about the article A call for interest in joining the aHUS CAB

A call for interest in joining the aHUS CAB

  • Post author:Len Woodward
  • Post published:February 6, 2023
  • Post category:News
  • Post comments:0 Comments

This time last year a couple of dozen people with an interest in global aHUS advocacy were discussing and deciding on…

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Read more about the article aHUS is confusing

aHUS is confusing

  • Post author:Len Woodward
  • Post published:February 4, 2023
  • Post category:News
  • Post comments:0 Comments

Sometimes it can be confusing being an aHUS patient. Even to knowing whether you are really an aHUS patient. Even if…

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Read more about the article The aHUS Global Advocate: Our Vol 6 Newsletter

The aHUS Global Advocate: Our Vol 6 Newsletter

  • Post author:Linda Burke
  • Post published:February 2, 2023
  • Post category:Featured
  • Post comments:0 Comments

We’re pleased to announce that our latest edition of The aHUS Global Advocate newsletter has been released (Vol 6, Jan 2023)…

Continue ReadingThe aHUS Global Advocate: Our Vol 6 Newsletter
Read more about the article What’s New in aHUS Research? Jan 2023 Edition

What’s New in aHUS Research? Jan 2023 Edition

  • Post author:Linda Burke
  • Post published:January 30, 2023
  • Post category:Featured
  • Post comments:0 Comments

Sometimes there are fascinating articles related to atypical HUS which people might miss, and it’s then that it’s particularly helpful to…

Continue ReadingWhat’s New in aHUS Research? Jan 2023 Edition
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