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Read more about the article Topics in aHUS Research – Sept 2022

Topics in aHUS Research – Sept 2022

  • Post author:Linda Burke
  • Post published:September 7, 2022
  • Post category:Featured
  • Post comments:0 Comments

Atypical HUS patients and family caregivers are direct consumers of medical information and research, as we have a vested interest in…

Continue ReadingTopics in aHUS Research – Sept 2022
Read more about the article Atypical HUS in Portugal

Atypical HUS in Portugal

  • Post author:Linda Burke
  • Post published:September 5, 2022
  • Post category:Featured
  • Post comments:0 Comments

We’re very pleased to offer this second in our series of ‘aHUS around the World’ where we feature the news and…

Continue ReadingAtypical HUS in Portugal
Read more about the article *Cancelled* Global aHUS “Town Hall” Meetings – Awareness Day 2022

*Cancelled* Global aHUS “Town Hall” Meetings – Awareness Day 2022

  • Post author:Len Woodward
  • Post published:September 1, 2022
  • Post category:News
  • Post comments:0 Comments

Breaking news Breaking News Breaking News Due to unforeseen events the planned Town Hall meetings on aHUS awareness are cancelled. Sorry…

Continue Reading*Cancelled* Global aHUS “Town Hall” Meetings – Awareness Day 2022
Read more about the article aHUS in New Zealand

aHUS in New Zealand

  • Post author:Linda Burke
  • Post published:August 24, 2022
  • Post category:Featured
  • Post comments:0 Comments

We're so pleased to highlight atypical HUS in New Zealand, with this article written by aHUS family caregiver Anna Benson. No…

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Read more about the article Does this genetic variant cause aHUS- Yes or No?

Does this genetic variant cause aHUS- Yes or No?

  • Post author:Len Woodward
  • Post published:August 22, 2022
  • Post category:Featured
  • Post comments:0 Comments

Are the predisposing genetic and triggering factors of aHUS fully catalogued and understood and will it help to know how variable…

Continue ReadingDoes this genetic variant cause aHUS- Yes or No?
Read more about the article aHUS Patient Meeting Aug 2022 – USTMA

aHUS Patient Meeting Aug 2022 – USTMA

  • Post author:Linda Burke
  • Post published:August 16, 2022
  • Post category:Featured
  • Post comments:0 Comments

Atypical HUS patients, family caregivers, and aHUS advocates are invited to attend a full day virtual meeting which will be held…

Continue ReadingaHUS Patient Meeting Aug 2022 – USTMA
Read more about the article MORL: An Impact on aHUS Genetics

MORL: An Impact on aHUS Genetics

  • Post author:Linda Burke
  • Post published:August 16, 2022
  • Post category:Featured
  • Post comments:0 Comments

What’s involved in aHUS genetic testing, and are all labs alike? The answer to the first is quite complex, and no…

Continue ReadingMORL: An Impact on aHUS Genetics
Read more about the article TMAs and aHUS illustrated

TMAs and aHUS illustrated

  • Post author:Len Woodward
  • Post published:July 31, 2022
  • Post category:News
  • Post comments:0 Comments

Here is a most unusual clinical article from earlier this year. In Thrombotic microangiopathies : An Illustrated review the Abou-Ismail Group…

Continue ReadingTMAs and aHUS illustrated
Read more about the article KDIGO – aHUS controversies and consensus

KDIGO – aHUS controversies and consensus

  • Post author:Len Woodward
  • Post published:July 26, 2022
  • Post category:News
  • Post comments:0 Comments

Six years ago, aHUS featured, along with another renal disease MPGN/C3G, in a controversies conference held by KDIGO (Kidney Disease Improving…

Continue ReadingKDIGO – aHUS controversies and consensus
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