aHUS Day 2022: Awareness Through Togetherness
The 8th international aHUS Awareness Day will occur on 24 September 2022, with this year’s theme as ‘Awareness through Togetherness’. We’re…
Atypical HUS: Listen, Comprehend, Act
It’s been quite an unsettling end to the first half of 2022 within the atypical HUS community, as July 2022 has…
Panoramic view of vittà alta. Bergamo - Italy
Bergamo- A Report on aHUS
11am 23 June 2022, Bergamo,Italy: The long awaited ISN Frontiers meeting about Renal Complement diseases featuring aHUS is about to begin.…
Accessible to all: aHUS Research
Atypical HUS Research, view over 900 aHUS-specific publications categorized by topic, compiled by the aHUS Alliance Global Action team.
A Community Advisory Board for aHUS
Today it can be announced that a Global aHUS Community Advisory Board (CAB) has been formed. What is a Community Advisory…
An aHUS diagnosis, lucky or what?
It is hard to believe that it will soon be two years since the aHUS Diagnosis Process project began. It began…
Panoramic view of vittà alta. Bergamo - Italy
3 weeks to aHUS Conference
The most important conference being held this year to feature aHUS, is the long awaited ISN Complement Mediated Renal Disease meeting…
That was the aHUS Rare Disease Day Video that was
65 questions, 29 article blogs with answers to the questions published between 7 March and 16 May and over 300 views…
Integrating a greater aHUS patient voice
A final question in the RDD2022 video series on how to integrate a patient voice of experience into aHUS Pharma and…
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